ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
Summary report of the TRANSFORM 2023 Conference
How can policymakers secure the promise of advanced therapies for patients over the next 6 months? Read the summary report of the TRANSFORM 2023 Conference to learn what our multi-stakeholder Alliance members and MEP Interest Group think is needed from decision-makers now, and in the next EU mandate. The current mandate of the European Parliament…...
One Health Conference – One Health for All, All for One Health
The recent epidemics and pandemics, in particular COVID-19, have made it unmistakably clear that human, animal, plant and environmental health cannot be dealt with separately, but need to be addressed in a ‘One Health’ approach. Their interdependencies need to be better acknowledged and require work at the interfaces in a multisectoral, transdisciplinary and an integrated…...
Beacon for Rare Diseases: The London Rare Disease Showcase 2023
Join Beacon for Rare, live and in-person for The London Rare Disease Showcase that aims to shed light on the latest innovations and advancements occurring in the field of rare diseases, with special emphasis on the vibrant rare disease landscape in the UK’s capital. The event is scheduled for 27th November 2023 from 9:30 to 17:00,…...
B1MG project draws to a close
The Beyond 1 Million Genomes project (B1MG) has been a €4M three-year Coordination and Support Action to support the design and testing phase of the European 1+Million Genomes (1+MG) initiative. This initiative facilitates signatory countries to realise a practice of personalised medicine and health, based upon a shared ‘framework’ and the infrastructure to safely access…...
XpanDH Webinar: The Risks for Europe Without a European Health Data Space
XpanDH will host its fourth webinar titled ‘Unlocking the Potential: The European Health Data Space and the Digital Future of European Healthcare‘ on Thursday 16 November 2023, 14:00 - 15:00 CET . In September 2020 the announcement of a new legislative proposal for a European Health Data Space (EHDS) was made by European Commission President Ursula von der…...
ERNs: A flagship EU action for patients with rare diseases
In the European Union (EU) alone, up to 36 million people are living with one of the over 6,000 distinct rare diseases. Each rare disease, however, has a low prevalence. The definition of a rare disease in the EU is one that affects fewer than 1 person out of 2,000. Currently, there is no known…...
ern.reconnet(at)ao-pisa.toscana.it
Summary report of the TRANSFORM 2023 Conference
How can policymakers secure the promise of advanced therapies for patients over the next 6 months? Read the summary report of the TRANSFORM 2023 Conference to learn what our multi-stakeholder Alliance members and MEP Interest Group think is needed from decision-makers now, and in the next EU mandate. The current mandate of the European Parliament…...
One Health Conference – One Health for All, All for One Health
The recent epidemics and pandemics, in particular COVID-19, have made it unmistakably clear that human, animal, plant and environmental health cannot be dealt with separately, but need to be addressed in a ‘One Health’ approach. Their interdependencies need to be better acknowledged and require work at the interfaces in a multisectoral, transdisciplinary and an integrated…...
Beacon for Rare Diseases: The London Rare Disease Showcase 2023
Join Beacon for Rare, live and in-person for The London Rare Disease Showcase that aims to shed light on the latest innovations and advancements occurring in the field of rare diseases, with special emphasis on the vibrant rare disease landscape in the UK’s capital. The event is scheduled for 27th November 2023 from 9:30 to 17:00,…...
B1MG project draws to a close
The Beyond 1 Million Genomes project (B1MG) has been a €4M three-year Coordination and Support Action to support the design and testing phase of the European 1+Million Genomes (1+MG) initiative. This initiative facilitates signatory countries to realise a practice of personalised medicine and health, based upon a shared ‘framework’ and the infrastructure to safely access…...
XpanDH Webinar: The Risks for Europe Without a European Health Data Space
XpanDH will host its fourth webinar titled ‘Unlocking the Potential: The European Health Data Space and the Digital Future of European Healthcare‘ on Thursday 16 November 2023, 14:00 - 15:00 CET . In September 2020 the announcement of a new legislative proposal for a European Health Data Space (EHDS) was made by European Commission President Ursula von der…...
ERNs: A flagship EU action for patients with rare diseases
In the European Union (EU) alone, up to 36 million people are living with one of the over 6,000 distinct rare diseases. Each rare disease, however, has a low prevalence. The definition of a rare disease in the EU is one that affects fewer than 1 person out of 2,000. Currently, there is no known…...
