ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
25th Congress on Immune Pathology and Orphan Diseases
The 25th Congress on Immune Pathology and Orphan Diseases will be held in Turin on 27-29 January 2022. The event will be hybrid. Additional info on the upcoming 25th Congress here and at patologiaimmune@seleneweb.com You can find here the program of the event...
10th UDNI Conference (31 January- 1 February 2022)
The 10th Undiagnosed Diseases Network International Conference will be held in Turin (Italy) on 31 January - 1 February 2022. The event will be hybrid. Additional info and registration to the upcoming 10th UDNI conference at udni.torino2022@gmail.com You can find here the program of the event...
Le ERN verso l’integrazione (30 novembre 2021)
I perché di questo evento Nel febbraio 2020, per celebrare la Giornata Mondiale delle Malattie Rare, le tre reti ERN (European Reference Networks) a coordinamento italiano (ERN ReCONNET, MetabERN e ERN Bond), Uniamo FIMR Onlus, ePAG Italia e il Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità hanno organizzato a Pisa un convegno in presenza,…...
Skin manifestations in EDS: what are they and how to manage them
Register to the ERN ReCONNET live webinar for healthcare professionals “Skin manifestations in EDS: what are they and how to manage them” by professors Fransiska Malfait (Ghent University) and Alberto Sulli (University of Genoa). 6th October 2020 at 3:00 PM (CET) → Register here Skin manifestations, such as skin hyperextensibility, skin fragility, poor wound healing, abnormal scar formation and easy…...
The Rheumatological point of view of EDS Syndromes: Articular manifestations
Register to the ERN ReCONNET live webinar for healthcare professionals “The Rheumatological point of view of EDS Syndromes: Articular manifestations” by professor Maurizio Cutolo (University of Genoa). 24th July 2020 at 2:00 PM (CET) → Register here How to recognize the Ehlers-Danlos (EDS ) syndromes through articular symptoms? Among the 13 EDS subtypes actually described, 12 of them…...
Clinical practice guidelines: what do you need to know
Save the date! Register to the ERN ReCONNET live webinar for patients “Clinical practice guidelines: what do you need to know” by Ilaria Galetti (European Patient Advocacy Group representative) and Rosaria Talarico (Azienda Ospedaliero Universitaria Pisana). 20th July 2020 at 3:00 PM (CET) → Register here The webinar will provide an overview on what Clinical Practice Guidelines are and…...
communication(at)ern-reconnet.eu
25th Congress on Immune Pathology and Orphan Diseases
The 25th Congress on Immune Pathology and Orphan Diseases will be held in Turin on 27-29 January 2022. The event will be hybrid. Additional info on the upcoming 25th Congress here and at patologiaimmune@seleneweb.com You can find here the program of the event...
10th UDNI Conference (31 January- 1 February 2022)
The 10th Undiagnosed Diseases Network International Conference will be held in Turin (Italy) on 31 January - 1 February 2022. The event will be hybrid. Additional info and registration to the upcoming 10th UDNI conference at udni.torino2022@gmail.com You can find here the program of the event...
Le ERN verso l’integrazione (30 novembre 2021)
I perché di questo evento Nel febbraio 2020, per celebrare la Giornata Mondiale delle Malattie Rare, le tre reti ERN (European Reference Networks) a coordinamento italiano (ERN ReCONNET, MetabERN e ERN Bond), Uniamo FIMR Onlus, ePAG Italia e il Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità hanno organizzato a Pisa un convegno in presenza,…...
Skin manifestations in EDS: what are they and how to manage them
Register to the ERN ReCONNET live webinar for healthcare professionals “Skin manifestations in EDS: what are they and how to manage them” by professors Fransiska Malfait (Ghent University) and Alberto Sulli (University of Genoa). 6th October 2020 at 3:00 PM (CET) → Register here Skin manifestations, such as skin hyperextensibility, skin fragility, poor wound healing, abnormal scar formation and easy…...
The Rheumatological point of view of EDS Syndromes: Articular manifestations
Register to the ERN ReCONNET live webinar for healthcare professionals “The Rheumatological point of view of EDS Syndromes: Articular manifestations” by professor Maurizio Cutolo (University of Genoa). 24th July 2020 at 2:00 PM (CET) → Register here How to recognize the Ehlers-Danlos (EDS ) syndromes through articular symptoms? Among the 13 EDS subtypes actually described, 12 of them…...
Clinical practice guidelines: what do you need to know
Save the date! Register to the ERN ReCONNET live webinar for patients “Clinical practice guidelines: what do you need to know” by Ilaria Galetti (European Patient Advocacy Group representative) and Rosaria Talarico (Azienda Ospedaliero Universitaria Pisana). 20th July 2020 at 3:00 PM (CET) → Register here The webinar will provide an overview on what Clinical Practice Guidelines are and…...
