ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
2023 International Day of Persons with Disabilities – IDPD
This year, ERN ReCONNET is glad to join the annual International Day of Disabled Persons that was proclaimed in 1992 by the United Nations General Assembly resolution 47/3. The observance of the Day aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities. It…...
Revision of the General Pharmaceutical Legislation: Impact Assessment of European Commission and EFPIA proposals
The European Commission has proposed revisions to the Pharmaceutical Legislation, with the view to tackle unmet medical needs, competitiveness, access and affordability. This update represents a once-in-a-generation opportunity to strengthen the European biopharmaceutical ecosystem, if fit-for-purpose policy options are implemented in response to the ambitious goals set. That is why EFPIA commissioned the present Impact…...
#EUHPP LIVE WEBINAR State of Health in the EU 2023 Country Profiles & Synthesis Report
This #EUHPP Live Webinar will be launched on 15 December at 11.00 at a virtual event organised by the European Commission. The event will be opened by Sandra Gallina (Director-General, Directorate-General for Health and Food Safety, European Commission), followed by a joint presentation of the Country Health Profiles by Mark Pearson, Deputy Director for Employment,…...
EJP RD: Online Academic Education Course
The following Massive Open Online Courses (MOOC) “Diagnosing rare diseases: from the clinic to research and back” and “Introduction to Translational Research for Rare Diseases” are available for registration. The aim of these educational academic courses, that are free, is to better inform and train the rare disease community as well as increase awareness and…...
LUPHPOS – Lupus Physician’ Perspective On GlucocorticoidS- Survey
ERN ReCONNET is happy to extedn this important survey to all its members and friends. You are invited to participate in the LUPHPOS survey (Lupus Physician's Perspective on GlucocorticoidS-Survey)! Corticoids (GC) play a key role in the treatment of systemic lupus erythematosus (SLE), especially in severe manifestations. Several studies highlight the harmful effects of chronic…...
ERN ReCONNET at the ERICA & EJP RD Joint Conference
ERN ReCONNET is glad to take part in the ERICA and EJP RD joint Conference that will take place in Amsterdam on November 21st. This is going to be a unique opportunity to explore the European and international rare disease research ecosystems, we would connect and consolidate our network with relevant stakeholders in the healthcare…...
ern.reconnet(at)ao-pisa.toscana.it
2023 International Day of Persons with Disabilities – IDPD
This year, ERN ReCONNET is glad to join the annual International Day of Disabled Persons that was proclaimed in 1992 by the United Nations General Assembly resolution 47/3. The observance of the Day aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities. It…...
Revision of the General Pharmaceutical Legislation: Impact Assessment of European Commission and EFPIA proposals
The European Commission has proposed revisions to the Pharmaceutical Legislation, with the view to tackle unmet medical needs, competitiveness, access and affordability. This update represents a once-in-a-generation opportunity to strengthen the European biopharmaceutical ecosystem, if fit-for-purpose policy options are implemented in response to the ambitious goals set. That is why EFPIA commissioned the present Impact…...
#EUHPP LIVE WEBINAR State of Health in the EU 2023 Country Profiles & Synthesis Report
This #EUHPP Live Webinar will be launched on 15 December at 11.00 at a virtual event organised by the European Commission. The event will be opened by Sandra Gallina (Director-General, Directorate-General for Health and Food Safety, European Commission), followed by a joint presentation of the Country Health Profiles by Mark Pearson, Deputy Director for Employment,…...
EJP RD: Online Academic Education Course
The following Massive Open Online Courses (MOOC) “Diagnosing rare diseases: from the clinic to research and back” and “Introduction to Translational Research for Rare Diseases” are available for registration. The aim of these educational academic courses, that are free, is to better inform and train the rare disease community as well as increase awareness and…...
LUPHPOS – Lupus Physician’ Perspective On GlucocorticoidS- Survey
ERN ReCONNET is happy to extedn this important survey to all its members and friends. You are invited to participate in the LUPHPOS survey (Lupus Physician's Perspective on GlucocorticoidS-Survey)! Corticoids (GC) play a key role in the treatment of systemic lupus erythematosus (SLE), especially in severe manifestations. Several studies highlight the harmful effects of chronic…...
ERN ReCONNET at the ERICA & EJP RD Joint Conference
ERN ReCONNET is glad to take part in the ERICA and EJP RD joint Conference that will take place in Amsterdam on November 21st. This is going to be a unique opportunity to explore the European and international rare disease research ecosystems, we would connect and consolidate our network with relevant stakeholders in the healthcare…...
