ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
AI Act
The EU Commission developed its AI Act, the first-ever legal framework on AI, which addresses the risks of AI and positions Europe to play a leading role globally. The AI Act provides AI developers and deployers with clear requirements and obligations regarding specific uses of AI. At the same time, the regulation seeks to reduce…...
EURORDIS 6th Mental Health & Wellbeing Webinar: ‘How to deliver a diagnosis’
The 6th Mental Health & Wellbeing Webinar: ‘How to deliver a diagnosis’ webinar organized by EURORDIS is scheduled for Oct. 23rd 2024 – from 2.00 pm to 3.30 pm CET. The ERN ReCONNET will be actively involved as our Scientific Coordinator, Dr. Talarico, will be one of the invited speakers. Registration is free and open.…...
New Jardin website is now online!
JARDIN is a Joint Action (JA) created to achieve the integration of the ERNs into National Healthcare Systems (NHS). The EU has funded this pioneering 3-year project involving all Member States (MS) plus Norway and Ukraine with the specific aim of reducing the diagnostic odyssey through the improvement the ERNs accessibility for patients across Europe.…...
Take the new Rare Barometer survey on the impact of rare diseases on everyday life: Make your voice heard!
The new EURORDIS Rare Barometer survey on the impact of rare diseases on everyday life is now live! By asking questions on your participation in daily activities, such as school, leisure, and work, and on what you would need to live life at its fullest, EURORDIS will be able to advocate for people with a…...
EJP RD – Data Resources and Tools Knowledge Awareness
EJP RD is still gathering responses for its survey on the impact of Rare Diseases research resources and tools provided by the Network. As a valued member of the Rare Diseases research community, your feedback is crucial. This survey will help them understand and address the gaps in rare diseases research, guiding our future efforts…...
EJP RD Online Course “Innovative Therapies and Personalized Medicine for Rare Diseases”
Exciting News! The new European Joint Programme of Rare Diseases (EJP RD) course "Innovative Therapies and Personalized Medicine for Rare Diseases" is officially live. Explore cutting-edge advancements in gene therapy, regenerative medicine, and beyond. Be a part of the revolution in rare disease treatment! In this five-week course of the EJP RD, you will have…...
communication(at)ern-reconnet.eu
AI Act
The EU Commission developed its AI Act, the first-ever legal framework on AI, which addresses the risks of AI and positions Europe to play a leading role globally. The AI Act provides AI developers and deployers with clear requirements and obligations regarding specific uses of AI. At the same time, the regulation seeks to reduce…...
EURORDIS 6th Mental Health & Wellbeing Webinar: ‘How to deliver a diagnosis’
The 6th Mental Health & Wellbeing Webinar: ‘How to deliver a diagnosis’ webinar organized by EURORDIS is scheduled for Oct. 23rd 2024 – from 2.00 pm to 3.30 pm CET. The ERN ReCONNET will be actively involved as our Scientific Coordinator, Dr. Talarico, will be one of the invited speakers. Registration is free and open.…...
New Jardin website is now online!
JARDIN is a Joint Action (JA) created to achieve the integration of the ERNs into National Healthcare Systems (NHS). The EU has funded this pioneering 3-year project involving all Member States (MS) plus Norway and Ukraine with the specific aim of reducing the diagnostic odyssey through the improvement the ERNs accessibility for patients across Europe.…...
Take the new Rare Barometer survey on the impact of rare diseases on everyday life: Make your voice heard!
The new EURORDIS Rare Barometer survey on the impact of rare diseases on everyday life is now live! By asking questions on your participation in daily activities, such as school, leisure, and work, and on what you would need to live life at its fullest, EURORDIS will be able to advocate for people with a…...
EJP RD – Data Resources and Tools Knowledge Awareness
EJP RD is still gathering responses for its survey on the impact of Rare Diseases research resources and tools provided by the Network. As a valued member of the Rare Diseases research community, your feedback is crucial. This survey will help them understand and address the gaps in rare diseases research, guiding our future efforts…...
EJP RD Online Course “Innovative Therapies and Personalized Medicine for Rare Diseases”
Exciting News! The new European Joint Programme of Rare Diseases (EJP RD) course "Innovative Therapies and Personalized Medicine for Rare Diseases" is officially live. Explore cutting-edge advancements in gene therapy, regenerative medicine, and beyond. Be a part of the revolution in rare disease treatment! In this five-week course of the EJP RD, you will have…...
