ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
New ePAGs Advocates joined the ERN ReCONNET
ERN ReCONNET is a growing Network and we are pleased to announce our new ePAG advocates that recently have joined us following the addition of Jose Ballarin in June. Those women will further strengthen our actions and impact across Europe on behalf of rare patients. Thank you and welcome on board! The Network welcomes Olga…...
ERN ReCONNET New Disease Coordinators
The ERN ReCONNET has elected its new Disease Coordinators that will lead the activities and actions of the Ehlers-Danlos syndromes (EDS) and the Sjögren’s Syndrome* (SS) disease groups. The elections saw a huge participation among the Network members and as ERN ReCONNET we congratulate with Dr. Marco Castori from the Fondazione IRCCS-Casa Sollievo della Sofferenza, San…...
EURORDIS: Black Pearl Awards 2025 Nominations
Don’t miss your chance to nominate your star of the rare disease community, or enter yourself, for the 2025 EURORDIS Black Pearl Awards! These award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media, and policy makers in bringing about change to improve the lives of the 30 million people in Europe…...
ERICA ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference, hosted by MetabERN, will take place from December 11th to December 13th, 2024 in Udine (Italy). The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity. ERICA…...
Rare DiseRare Diseases International (RDI) Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025
The public webinar “Towards a World Health Assembly Resolution on Rare Diseases 2025”, that will take place on Aug. 30th 2024, 14:00 and 15:30 CEST. This webinar, co-hosted by Rare Diseases International (RDI), the Arab Republic of Egypt, the State of Qatar, and Spain will be an opportunity to explain in more detail the opportunities…...
ERN ReCONNET Endorsed Event: 1st Myositis Summer School of the Myositis Network Germany
On August 9 and 10, 2024, the first Myositis Summer School of the Myositis Network Germany, endorsed by the ERN ReCONNET, took place at the Kerckhoff Campus of the JLU Gießen in Bad Nauheim. This summer school was made possible by the generous support of the Gabriele and Peter Nitschke Foundation. It offered intensive theoretical…...
ern.reconnet(at)ao-pisa.toscana.it
New ePAGs Advocates joined the ERN ReCONNET
ERN ReCONNET is a growing Network and we are pleased to announce our new ePAG advocates that recently have joined us following the addition of Jose Ballarin in June. Those women will further strengthen our actions and impact across Europe on behalf of rare patients. Thank you and welcome on board! The Network welcomes Olga…...
ERN ReCONNET New Disease Coordinators
The ERN ReCONNET has elected its new Disease Coordinators that will lead the activities and actions of the Ehlers-Danlos syndromes (EDS) and the Sjögren’s Syndrome* (SS) disease groups. The elections saw a huge participation among the Network members and as ERN ReCONNET we congratulate with Dr. Marco Castori from the Fondazione IRCCS-Casa Sollievo della Sofferenza, San…...
EURORDIS: Black Pearl Awards 2025 Nominations
Don’t miss your chance to nominate your star of the rare disease community, or enter yourself, for the 2025 EURORDIS Black Pearl Awards! These award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media, and policy makers in bringing about change to improve the lives of the 30 million people in Europe…...
ERICA ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference, hosted by MetabERN, will take place from December 11th to December 13th, 2024 in Udine (Italy). The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity. ERICA…...
Rare DiseRare Diseases International (RDI) Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025
The public webinar “Towards a World Health Assembly Resolution on Rare Diseases 2025”, that will take place on Aug. 30th 2024, 14:00 and 15:30 CEST. This webinar, co-hosted by Rare Diseases International (RDI), the Arab Republic of Egypt, the State of Qatar, and Spain will be an opportunity to explain in more detail the opportunities…...
ERN ReCONNET Endorsed Event: 1st Myositis Summer School of the Myositis Network Germany
On August 9 and 10, 2024, the first Myositis Summer School of the Myositis Network Germany, endorsed by the ERN ReCONNET, took place at the Kerckhoff Campus of the JLU Gießen in Bad Nauheim. This summer school was made possible by the generous support of the Gabriele and Peter Nitschke Foundation. It offered intensive theoretical…...
