ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
Launch of the new CPMS 2.0 in ERN ReCONNET
On 26th June 2025, ERN ReCONNET hosted the launch webinar for the new CPMS 2.0, welcoming over 65 participants from across the Network. Prof. Marta Mosca opened the session by underlining the strategic role of the Clinical Patient Management System as a cornerstone for multidisciplinary and cross-border collaboration in the field of rare and complex…...
ERN ReCONNET @EULAR 2025
ERN ReCONNET at the 2025 EULAR Congress in Barcelona ERN ReCONNET was proud to participate in the 2025 edition of the EULAR Congress, which took place in Barcelona from June 11th to 14th. As one of the largest and most influential events in the field of rheumatology, the EULAR Congress offered a unique opportunity to…...
ERN ReCONNET Stories
Are you a patient living with a rare or low-prevalence connective tissue disease? Tell your story! Among other initiatives, the ERN ReCONNET is working on the development of organisational patient’s pathway models for rare connective tissue diseases (rCTDs) covered by the Network. The organisational patient’s pathway models will be developed following the RarERN Path methodology, developed by the…...
New ERN ReCONNET Strategic Board
The new ERN ReCONNET Strategic Board We are pleased to announce the composition of the new ERN ReCONNET Strategic Board. We extend our warmest congratulations to the new members of the Board for their commitment and look forward to their contributions in guiding the network towards continued excellence. The members of the new ERN ReCONNET…...The European Parliament’s public health committee kicks off its survey on rare diseases
The purpose of this public consultation is to provide a basis for the forthcoming work of the Committee on Public Health (SANT) in bringing a better understanding and detailed knowledge of the challenges of persons affected by rare diseases and views of persons working with or involved in rare diseases. The online survey can be filled in…...
ERN ReCONNET celebrates Rare Disease Day 2025
ERN ReCONNET celebrates the Rare Disease Day lighting the Leaning Tower of Pisa. ERNs stand close to all those living with a rare disease. Rare is many. Rare is strong. Rare is proud. ...
ern.reconnet(at)ao-pisa.toscana.it
Launch of the new CPMS 2.0 in ERN ReCONNET
On 26th June 2025, ERN ReCONNET hosted the launch webinar for the new CPMS 2.0, welcoming over 65 participants from across the Network. Prof. Marta Mosca opened the session by underlining the strategic role of the Clinical Patient Management System as a cornerstone for multidisciplinary and cross-border collaboration in the field of rare and complex…...
ERN ReCONNET @EULAR 2025
ERN ReCONNET at the 2025 EULAR Congress in Barcelona ERN ReCONNET was proud to participate in the 2025 edition of the EULAR Congress, which took place in Barcelona from June 11th to 14th. As one of the largest and most influential events in the field of rheumatology, the EULAR Congress offered a unique opportunity to…...
ERN ReCONNET Stories
Are you a patient living with a rare or low-prevalence connective tissue disease? Tell your story! Among other initiatives, the ERN ReCONNET is working on the development of organisational patient’s pathway models for rare connective tissue diseases (rCTDs) covered by the Network. The organisational patient’s pathway models will be developed following the RarERN Path methodology, developed by the…...
New ERN ReCONNET Strategic Board
The new ERN ReCONNET Strategic Board We are pleased to announce the composition of the new ERN ReCONNET Strategic Board. We extend our warmest congratulations to the new members of the Board for their commitment and look forward to their contributions in guiding the network towards continued excellence. The members of the new ERN ReCONNET…...
The European Parliament’s public health committee kicks off its survey on rare diseases
The purpose of this public consultation is to provide a basis for the forthcoming work of the Committee on Public Health (SANT) in bringing a better understanding and detailed knowledge of the challenges of persons affected by rare diseases and views of persons working with or involved in rare diseases. The online survey can be filled in…...
ERN ReCONNET celebrates Rare Disease Day 2025
ERN ReCONNET celebrates the Rare Disease Day lighting the Leaning Tower of Pisa. ERNs stand close to all those living with a rare disease. Rare is many. Rare is strong. Rare is proud. ...
