ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
Enpr-EMA: Cross-Border Access to Paediatric Clinical Trials Survey
The Cross-Border Access to Paediatric Clinical Trials Working Group (WG) created by the European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA) is collecting data. The aim of this WG is to facilitate the inclusion of children and young people in clinical trials across Europe avoiding any language barriers. Recently, this WG has identified that…...
Newborn Screening – Real World Applications and Technologies
IRDiRC's Special Edition on "Newborn Screening - Real World Applications and Technologies" is now out. Guest editors are Dr. David A. Pearce chair of IRDiRC and Dr. Virginie Bros-Facer member of the Diagnostic Scientific Committee at IRDiRC. Newborn screening (NBS) programs are an integral part of public health systems aiming to identify infants born with…...
AI Act
The EU Commission developed its AI Act, the first-ever legal framework on AI, which addresses the risks of AI and positions Europe to play a leading role globally. The AI Act provides AI developers and deployers with clear requirements and obligations regarding specific uses of AI. At the same time, the regulation seeks to reduce…...
EURORDIS 6th Mental Health & Wellbeing Webinar: ‘How to deliver a diagnosis’
The 6th Mental Health & Wellbeing Webinar: ‘How to deliver a diagnosis’ webinar organized by EURORDIS is scheduled for Oct. 23rd 2024 – from 2.00 pm to 3.30 pm CET. The ERN ReCONNET will be actively involved as our Scientific Coordinator, Dr. Talarico, will be one of the invited speakers. Registration is free and open.…...
New Jardin website is now online!
JARDIN is a Joint Action (JA) created to achieve the integration of the ERNs into National Healthcare Systems (NHS). The EU has funded this pioneering 3-year project involving all Member States (MS) plus Norway and Ukraine with the specific aim of reducing the diagnostic odyssey through the improvement the ERNs accessibility for patients across Europe.…...
Take the new Rare Barometer survey on the impact of rare diseases on everyday life: Make your voice heard!
The new EURORDIS Rare Barometer survey on the impact of rare diseases on everyday life is now live! By asking questions on your participation in daily activities, such as school, leisure, and work, and on what you would need to live life at its fullest, EURORDIS will be able to advocate for people with a…...
ern.reconnet(at)ao-pisa.toscana.it
Enpr-EMA: Cross-Border Access to Paediatric Clinical Trials Survey
The Cross-Border Access to Paediatric Clinical Trials Working Group (WG) created by the European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA) is collecting data. The aim of this WG is to facilitate the inclusion of children and young people in clinical trials across Europe avoiding any language barriers. Recently, this WG has identified that…...
Newborn Screening – Real World Applications and Technologies
IRDiRC's Special Edition on "Newborn Screening - Real World Applications and Technologies" is now out. Guest editors are Dr. David A. Pearce chair of IRDiRC and Dr. Virginie Bros-Facer member of the Diagnostic Scientific Committee at IRDiRC. Newborn screening (NBS) programs are an integral part of public health systems aiming to identify infants born with…...
AI Act
The EU Commission developed its AI Act, the first-ever legal framework on AI, which addresses the risks of AI and positions Europe to play a leading role globally. The AI Act provides AI developers and deployers with clear requirements and obligations regarding specific uses of AI. At the same time, the regulation seeks to reduce…...
EURORDIS 6th Mental Health & Wellbeing Webinar: ‘How to deliver a diagnosis’
The 6th Mental Health & Wellbeing Webinar: ‘How to deliver a diagnosis’ webinar organized by EURORDIS is scheduled for Oct. 23rd 2024 – from 2.00 pm to 3.30 pm CET. The ERN ReCONNET will be actively involved as our Scientific Coordinator, Dr. Talarico, will be one of the invited speakers. Registration is free and open.…...
New Jardin website is now online!
JARDIN is a Joint Action (JA) created to achieve the integration of the ERNs into National Healthcare Systems (NHS). The EU has funded this pioneering 3-year project involving all Member States (MS) plus Norway and Ukraine with the specific aim of reducing the diagnostic odyssey through the improvement the ERNs accessibility for patients across Europe.…...
Take the new Rare Barometer survey on the impact of rare diseases on everyday life: Make your voice heard!
The new EURORDIS Rare Barometer survey on the impact of rare diseases on everyday life is now live! By asking questions on your participation in daily activities, such as school, leisure, and work, and on what you would need to live life at its fullest, EURORDIS will be able to advocate for people with a…...
