ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET Infographic on Videocapillaroscopy
The ERN ReCONNET Education and Training Working Group (WG) is glad to release its new flyer on nailfold videocapillaroscopy (NVC), a new and informative document targeting patients and lay audience aimed at explaining such an important diagnostic approach. The document was developed by the Network under the leadership of Prof. Maurizio Cutolo from IRCSS –…...
ERN ReCONNET at the ACR 2024
ERN ReCONNET is very honored to be at the ACR Convergence 2024 that will take place November 14 – 19 at the Walter E. Washington Convention Center in Washington, D.C.! The ERN ReCONNET Coordination Team will be at Booth number 2101. Stop by to say hi, to chat with us, and to meet with other…...
New ePAGs Advocates joined the ERN ReCONNET
ERN ReCONNET is a growing Network and we are pleased to announce our new ePAG advocates that recently have joined us following the addition of Jose Ballarin in June. Those women will further strengthen our actions and impact across Europe on behalf of rare patients. Thank you and welcome on board! The Network welcomes Olga…...
ERN ReCONNET New Disease Coordinators
The ERN ReCONNET has elected its new Disease Coordinators that will lead the activities and actions of the Ehlers-Danlos syndromes (EDS) and the Sjögren’s Syndrome* (SS) disease groups. The elections saw a huge participation among the Network members and as ERN ReCONNET we congratulate with Dr. Marco Castori from the Fondazione IRCCS-Casa Sollievo della Sofferenza, San…...
EURORDIS: Black Pearl Awards 2025 Nominations
Don’t miss your chance to nominate your star of the rare disease community, or enter yourself, for the 2025 EURORDIS Black Pearl Awards! These award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media, and policy makers in bringing about change to improve the lives of the 30 million people in Europe…...
ERICA ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference, hosted by MetabERN, will take place from December 11th to December 13th, 2024 in Udine (Italy). The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity. ERICA…...
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET Infographic on Videocapillaroscopy
The ERN ReCONNET Education and Training Working Group (WG) is glad to release its new flyer on nailfold videocapillaroscopy (NVC), a new and informative document targeting patients and lay audience aimed at explaining such an important diagnostic approach. The document was developed by the Network under the leadership of Prof. Maurizio Cutolo from IRCSS –…...
ERN ReCONNET at the ACR 2024
ERN ReCONNET is very honored to be at the ACR Convergence 2024 that will take place November 14 – 19 at the Walter E. Washington Convention Center in Washington, D.C.! The ERN ReCONNET Coordination Team will be at Booth number 2101. Stop by to say hi, to chat with us, and to meet with other…...
New ePAGs Advocates joined the ERN ReCONNET
ERN ReCONNET is a growing Network and we are pleased to announce our new ePAG advocates that recently have joined us following the addition of Jose Ballarin in June. Those women will further strengthen our actions and impact across Europe on behalf of rare patients. Thank you and welcome on board! The Network welcomes Olga…...
ERN ReCONNET New Disease Coordinators
The ERN ReCONNET has elected its new Disease Coordinators that will lead the activities and actions of the Ehlers-Danlos syndromes (EDS) and the Sjögren’s Syndrome* (SS) disease groups. The elections saw a huge participation among the Network members and as ERN ReCONNET we congratulate with Dr. Marco Castori from the Fondazione IRCCS-Casa Sollievo della Sofferenza, San…...
EURORDIS: Black Pearl Awards 2025 Nominations
Don’t miss your chance to nominate your star of the rare disease community, or enter yourself, for the 2025 EURORDIS Black Pearl Awards! These award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media, and policy makers in bringing about change to improve the lives of the 30 million people in Europe…...
ERICA ERN Research Conference
The ERICA 4th General Assembly & ERN Research Conference, hosted by MetabERN, will take place from December 11th to December 13th, 2024 in Udine (Italy). The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity. ERICA…...
