ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
Meet our new UCTD ePAG Advocate Ramona Luciu
Welcome to Ramona Luciu, the new ERN ReCONNET ePAG Advocate representing UCTD! Ramona Luciu is from from Romania, she has been diagnosed with UCTD in 2021 and she represents the UCTD patient community. Ramona is a member of the ART Association (Association of Patients with Inflammatory Rheumatic Diseases in Transilvania) and she has a degree in…...
New Booklet on ERNs published by the European Commission
Just a few days ahead of the 2025 Rare Disease Day and the European Commission has recently published a series of documents on Rare Diseases, including a new Booklet "European Reference Networks. A success story for patients living with a rare disease". Find out more about ERN ReCONNET and other ERNs at this link: https://lnkd.in/dDeVvd9g…...
ERN RECONNET – NEWSLETTER N. 27: DECEMBER EDITION
The new ERN ReCONNET Newsletter n. 27 – DECEMBER EDITION – is out! Here is a list of our last news for this amazing new edition: Season's Greetings from the Network Coordinator of ERN ReCONNET 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases is coming up! CPMS 2.0 Launch and Training Opportunity! Meet our new…...
ERN RECONNET – NEWSLETTER N. 26: SEPTEMBER EDITION
The new ERN ReCONNET Newsletter n. 26 – SEPTEMBER EDITION – is out! Here is a list of our last news for this amazing new edition: 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases New ERN ReCONNET Disease Coordinators ERN ReCONNET at the ACR 2024 ERN ReCONNET Exchange Program - Update ERN ReCONNET Webinars (Season…...
Newborn Screening (NBS) Awareness Month
In the US, during 1950s-1960s Dr. Robert Guthrie developed a paper blood spot card test as a new assay to screen newborns for phenylketonuria, PKU: The Newborn Screening (NBS) test was born. His pioneer work defined the beginning of the NBS programs that led to early diagnosis of children with genetic conditions (like PKU, a…...
ERN ReCONNET Infographic on Videocapillaroscopy
The ERN ReCONNET Education and Training Working Group (WG) is glad to release its new flyer on nailfold videocapillaroscopy (NVC), a new and informative document targeting patients and lay audience aimed at explaining such an important diagnostic approach. The document was developed by the Network under the leadership of Prof. Maurizio Cutolo from IRCSS –…...
ern.reconnet(at)ao-pisa.toscana.it
Meet our new UCTD ePAG Advocate Ramona Luciu
Welcome to Ramona Luciu, the new ERN ReCONNET ePAG Advocate representing UCTD! Ramona Luciu is from from Romania, she has been diagnosed with UCTD in 2021 and she represents the UCTD patient community. Ramona is a member of the ART Association (Association of Patients with Inflammatory Rheumatic Diseases in Transilvania) and she has a degree in…...
New Booklet on ERNs published by the European Commission
Just a few days ahead of the 2025 Rare Disease Day and the European Commission has recently published a series of documents on Rare Diseases, including a new Booklet "European Reference Networks. A success story for patients living with a rare disease". Find out more about ERN ReCONNET and other ERNs at this link: https://lnkd.in/dDeVvd9g…...
ERN RECONNET – NEWSLETTER N. 27: DECEMBER EDITION
The new ERN ReCONNET Newsletter n. 27 – DECEMBER EDITION – is out! Here is a list of our last news for this amazing new edition: Season's Greetings from the Network Coordinator of ERN ReCONNET 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases is coming up! CPMS 2.0 Launch and Training Opportunity! Meet our new…...
ERN RECONNET – NEWSLETTER N. 26: SEPTEMBER EDITION
The new ERN ReCONNET Newsletter n. 26 – SEPTEMBER EDITION – is out! Here is a list of our last news for this amazing new edition: 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases New ERN ReCONNET Disease Coordinators ERN ReCONNET at the ACR 2024 ERN ReCONNET Exchange Program - Update ERN ReCONNET Webinars (Season…...
Newborn Screening (NBS) Awareness Month
In the US, during 1950s-1960s Dr. Robert Guthrie developed a paper blood spot card test as a new assay to screen newborns for phenylketonuria, PKU: The Newborn Screening (NBS) test was born. His pioneer work defined the beginning of the NBS programs that led to early diagnosis of children with genetic conditions (like PKU, a…...
ERN ReCONNET Infographic on Videocapillaroscopy
The ERN ReCONNET Education and Training Working Group (WG) is glad to release its new flyer on nailfold videocapillaroscopy (NVC), a new and informative document targeting patients and lay audience aimed at explaining such an important diagnostic approach. The document was developed by the Network under the leadership of Prof. Maurizio Cutolo from IRCSS –…...
