ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
ERN ReCONNET SLE Survey
The deadline for the ERN ReCONNET RarERN Path Systemic Lupus Erythematous (SLE) survey is Feb. 29th, so there is still time to tell us YOUR story, moreover now the languages are 14 with with French and German. Among other initiatives, the ERN ReCONNET is working on the development of organisational patient’s pathway models for rare connective…...
Rare Diseases in the EU: Joint Action shaping the future of ERNs JARDIN kick-off meeting
ERN ReCONNET is honored to join the major conference on Rare Diseases in the EU: Joint Action shaping the future of ERNs organized by the European Economic and Social Committee (EESC) with the Directorate-General for Health and Food Safety (DG SANTE) of the European Commission. The event will take place on March 8th, 2024 in Brussels, Belgium. The conference will conclude the…...
8th World Scleroderma Congress
ERN ReCONNET is glad to share with you the upcoming 8th World Scleroderma Congress that will be held on March 14- 16, 2024 in Prague (Czech Republic). The first 5 congresses in Florence 2010, Madrid 2012, Rome 2014, Lisbon 2016, Bordeaux 2018, and two online in 2020 and 2022 have been a success contributing to…...
EJP RD Final Conference
The EJP RD Final Conference is scheduled to take place from May 27th to May 28th, 2024 in Bari, Italy, this conference is set to bring together leading experts, professionals, and enthusiasts from around the world. Please note: the hybrid event is open in person only to invited people. The event is open for all online. Event Highlights:…...
Patient World Congress- World Scleroderma Congress 2024
The Federation of European Scleroderma Associations (FESCA) is pleased to announce that the Patient World Congress which will take place on the 15-16 March, 2024 in Prague, Czech Republic. The programme has been designed for patients and by patients, and will cover topics including, are the most recent scientific developments and treatment recommendations, management of…...
Let’s start the awareness month of Rare Diseases 2024!
February has started and ERN ReCONNET is very excited to be part of the global movement aimed at raising awareness of Rare Diseases! A few numbers and facts to recall the current status quo of Rare Diseases. Let's start... 30 MILLION people are living with a rare disease in 48 countries in Europe Each…...
communication(at)ern-reconnet.eu
ERN ReCONNET SLE Survey
The deadline for the ERN ReCONNET RarERN Path Systemic Lupus Erythematous (SLE) survey is Feb. 29th, so there is still time to tell us YOUR story, moreover now the languages are 14 with with French and German. Among other initiatives, the ERN ReCONNET is working on the development of organisational patient’s pathway models for rare connective…...
Rare Diseases in the EU: Joint Action shaping the future of ERNs JARDIN kick-off meeting
ERN ReCONNET is honored to join the major conference on Rare Diseases in the EU: Joint Action shaping the future of ERNs organized by the European Economic and Social Committee (EESC) with the Directorate-General for Health and Food Safety (DG SANTE) of the European Commission. The event will take place on March 8th, 2024 in Brussels, Belgium. The conference will conclude the…...
8th World Scleroderma Congress
ERN ReCONNET is glad to share with you the upcoming 8th World Scleroderma Congress that will be held on March 14- 16, 2024 in Prague (Czech Republic). The first 5 congresses in Florence 2010, Madrid 2012, Rome 2014, Lisbon 2016, Bordeaux 2018, and two online in 2020 and 2022 have been a success contributing to…...
EJP RD Final Conference
The EJP RD Final Conference is scheduled to take place from May 27th to May 28th, 2024 in Bari, Italy, this conference is set to bring together leading experts, professionals, and enthusiasts from around the world. Please note: the hybrid event is open in person only to invited people. The event is open for all online. Event Highlights:…...
Patient World Congress- World Scleroderma Congress 2024
The Federation of European Scleroderma Associations (FESCA) is pleased to announce that the Patient World Congress which will take place on the 15-16 March, 2024 in Prague, Czech Republic. The programme has been designed for patients and by patients, and will cover topics including, are the most recent scientific developments and treatment recommendations, management of…...
Let’s start the awareness month of Rare Diseases 2024!
February has started and ERN ReCONNET is very excited to be part of the global movement aimed at raising awareness of Rare Diseases! A few numbers and facts to recall the current status quo of Rare Diseases. Let's start... 30 MILLION people are living with a rare disease in 48 countries in Europe Each…...
