ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
Newly Elected ERN ReCONNET Disease Coordinators
ERN ReCONNET is pleased to announce the results of the recent elections for the network’s Disease Coordinators for the upcoming mandate. This election cycle recorded an exceptionally high level of participation from the Board of Network, reflecting the strong engagement and commitment of our Network. ERN ReCONNET extends its sincere appreciation to all those who…...
ERN ReCONNET Holds Transition Training Workshop in Ljubljana to Advance Curriculum Development for Transition of Care in Rheumatology
Ljubljana, Slovenia – 13–14 November 2025 ERN ReCONNET successfully hosted a two-day Transition Training Workshop in Ljubljana dedicated to developing a shared European curriculum for improving the transition of care for adolescents and young adults living with rare and complex connective tissue and musculoskeletal diseases (rCTDs). The workshop, titled “Developing the ERN ReCONNET Curriculum for…...
ERN ReCONNET Transition of care Survey
Your Experience Can Help Improve Care Across Europe: participate now in the ERN ReCONNET Transition Survey ERN ReCONNET has launched a European-wide survey to better understand the transition process from paediatric to adult healthcare for people living with rare connective tissue diseases (rCTDs). Why this survey matters Transitioning from paediatric to adult care…...
Read the latest ERN ReCONNET Newsletter n. 29 – July edition
📢 The new ERN ReCONNET Newsletter n. 29 – JULY EDITION – is out! Dive into the latest updates, exciting developments, and upcoming initiatives from the ERN ReCONNET community. Here’s what you’ll find in this edition: 🔹 CPMS 2.0 Launch Webinar – A milestone for virtual cross-border collaboration in rare diseases🔹 Election of the New…...
New ePAG Advocates for APS and IgG4
ERN ReCONNET is delighted to announce the addition of two new ePAG Advocates to its patient community: Alexander Patsalias and Jamy Scheerhoorn-Pullen. Jamy Scheerhoorn-Pullen steps in as the ePAG Advocate for Antiphospholipid Syndrome (APS). Jamy is an engaged member of the NVLE (Dutch Association for Patients with Rare Connective Tissue Diseases), focusing on patient participation, and also serves…...
Launch of the new CPMS 2.0 in ERN ReCONNET
On 26th June 2025, ERN ReCONNET hosted the launch webinar for the new CPMS 2.0, welcoming over 65 participants from across the Network. Prof. Marta Mosca opened the session by underlining the strategic role of the Clinical Patient Management System as a cornerstone for multidisciplinary and cross-border collaboration in the field of rare and complex…...
ern.reconnet(at)ao-pisa.toscana.it
Newly Elected ERN ReCONNET Disease Coordinators
ERN ReCONNET is pleased to announce the results of the recent elections for the network’s Disease Coordinators for the upcoming mandate. This election cycle recorded an exceptionally high level of participation from the Board of Network, reflecting the strong engagement and commitment of our Network. ERN ReCONNET extends its sincere appreciation to all those who…...
ERN ReCONNET Holds Transition Training Workshop in Ljubljana to Advance Curriculum Development for Transition of Care in Rheumatology
Ljubljana, Slovenia – 13–14 November 2025 ERN ReCONNET successfully hosted a two-day Transition Training Workshop in Ljubljana dedicated to developing a shared European curriculum for improving the transition of care for adolescents and young adults living with rare and complex connective tissue and musculoskeletal diseases (rCTDs). The workshop, titled “Developing the ERN ReCONNET Curriculum for…...
ERN ReCONNET Transition of care Survey
Your Experience Can Help Improve Care Across Europe: participate now in the ERN ReCONNET Transition Survey ERN ReCONNET has launched a European-wide survey to better understand the transition process from paediatric to adult healthcare for people living with rare connective tissue diseases (rCTDs). Why this survey matters Transitioning from paediatric to adult care…...
Read the latest ERN ReCONNET Newsletter n. 29 – July edition
📢 The new ERN ReCONNET Newsletter n. 29 – JULY EDITION – is out! Dive into the latest updates, exciting developments, and upcoming initiatives from the ERN ReCONNET community. Here’s what you’ll find in this edition: 🔹 CPMS 2.0 Launch Webinar – A milestone for virtual cross-border collaboration in rare diseases🔹 Election of the New…...
New ePAG Advocates for APS and IgG4
ERN ReCONNET is delighted to announce the addition of two new ePAG Advocates to its patient community: Alexander Patsalias and Jamy Scheerhoorn-Pullen. Jamy Scheerhoorn-Pullen steps in as the ePAG Advocate for Antiphospholipid Syndrome (APS). Jamy is an engaged member of the NVLE (Dutch Association for Patients with Rare Connective Tissue Diseases), focusing on patient participation, and also serves…...
Launch of the new CPMS 2.0 in ERN ReCONNET
On 26th June 2025, ERN ReCONNET hosted the launch webinar for the new CPMS 2.0, welcoming over 65 participants from across the Network. Prof. Marta Mosca opened the session by underlining the strategic role of the Clinical Patient Management System as a cornerstone for multidisciplinary and cross-border collaboration in the field of rare and complex…...
