New Jardin website is now online!
JARDIN is a Joint Action (JA) created to achieve the integration of the ERNs into National Healthcare Systems (NHS).
The EU has funded this pioneering 3-year project involving all Member States (MS) plus Norway and Ukraine with the specific aim of reducing the diagnostic odyssey through the improvement the ERNs accessibility for patients across Europe.
JARDIN‘s mission and vision are based on “Integration, equity, and sustainability”, its aim is to bridge the ERNs and the NHS.
Its vision is focused on having people living with rare diseases or complex conditions at the center of care by making their care pathways clear and easily accessible.
JARDIN will develop recommendations and implementation pilot projects in patient pathways, national reference networks, and data management for rare diseases or complex conditions.
Specifically, activities will include the identification and the exchange of best practices, development of concrete recommendations, guidelines, and toolboxes suited for the needs of all MS taking into account the different preconditions, such as size and population, economy, and structure of the respective healthcare system. In addition, JARDIN will support capacity building and will perform pilot implementation steps on different levels in MS in the proposed fields of action.
Furthermore, JARDIN will define strategies for systematic dissemination of information related to ERNs with a specific emphasis on people living with rare diseases as well as the healthcare professionals community.
JARDIN is in line with the general objective of the call in the framework of the European Union Programme for Action in the field of Health (EU4Health), area of action “Enhanced European Reference Networks”.
JARDIN: Improving the accessibility to the ERNs by integrating them into the National Healthcare Systems
Discover more about JARDIN by visiting its new website!