ERN ReCONNET Launches EU-Wide Survey on Self-Management of Digital Ulcers in Systemic Sclerosis
ERN ReCONNET has just launched a new survey focused on the assessment and self-management of digital lesions (including digital ulcers) in people living with systemic sclerosis (SSc).
Digital ulcers are a frequent and challenging complication of SSc, and understanding how patients manage these lesions in their daily lives is essential to improving care across Europe.
Purpose of the Survey
The survey aims to collect insights from patients across EU countries on how they monitor, treat, and cope with digital lesions. The information gathered will support the development of future recommendations, promote best practices, and foster collaborative initiatives within the SSc community.
Who Can Participate
The survey is intended for people living with systemic sclerosis.
Languages Available
To ensure broad participation, the survey is available in nine languages: Italian, English, Romanian, French, Spanish, Portuguese, Dutch, Latvian, and Danish.
How to Participate
Survey links:
- Danish: https://bit.ly/SScDanish
- Dutch: https://bit.ly/SScDutch
- English: https://bit.ly/SScEnglish
- French: https://bit.ly/SScFrench
- Italian: https://bit.ly/SScItalian
- Latvian: https://bit.ly/SScLatvian
- Portuguese: https://bit.ly/SScPortuguese
- Romanian: https://bit.ly/SSc_Romanian
- Spanish: https://bit.ly/SScSpanish
⏰ Deadline for participation: 15th January 2026
We warmly encourage patients, caregivers, and patient organisations to share the survey within their networks. Every response is valuable and will contribute to building a more complete picture of patient needs across Europe.
Thank you for your support in helping us advance knowledge and care for people living with systemic sclerosis.
