Zoe Karakikla-Mitsakou is an ERN ReCONNET ePAG representative for rare connective tissue diseases, representing Systemic Lupus Erythematosus (SLE). Zoe joined Lupus Europe in 2020 as a project [...]
The year 2025 has been a period of significant progress for the Systemic Lupus Erythematosus (SLE) Disease Group, marked by new leadership under ad interim Disease Coordinators Marta Mosca and [...]
The Relapsing Polychondritis (RP) Disease Group achieved significant progress in 2025, focusing on standardizing diagnosis and improving Patient-Reported Outcomes (PROMs). The RP Disease group [...]
Register now for the next ERN RECONNET webinar: “Diagnosis and management of peripheral neurological manifestations in Sjögren’s disease” It will take place on the 19th of March 2025, at 16 CET [...]
Just a few days ahead of the 2025 Rare Disease Day and the European Commission has recently published a series of documents on Rare Diseases, including a new Booklet “European Reference Networks. [...]
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