Disease Info

Disease: Sjögren’s syndrome

Sjögren’s syndrome (SS)

Sjögren’s syndrome (SS) is a systemic autoimmune disease that involves particularly salivary and lachrymal glands. As a consequence, typically, patients complain of ocular and oral dryness and salivary gland swelling. Moreover, skin, nasal and vaginal dryness are quite common as well. In addition to dryness, other frequently reported symptoms are also widespread pain and fatigue. In one third of the patients, Sjögren’s syndrome may also affect other parts of the body, including your joints, lungs, kidneys, blood vessels, digestive organs, and nerves. A minority of patients may develop a non Hodgkin’s lymphoma as a complication of the disease. Sjögren’s syndrome mostly occurs in middle-aged women.

The diagnosis of Sjögren’s syndrome is made on the basis of medical history, physical exam, ocular and oral tests, blood tests, and salivary gland biopsies. Treatment focuses on relieving symptoms by using artificial tears, sugar-free candy, drinking water often for a dry mouth or an oral drug called pilocarpine that may improve dryness. Extra glandular symptoms may require immunosuppressive drugs. Novel biological drugs are in the pipeline for the treatment of the disease.

Congratulations to Prof. Chiara Baldini from AOUP for being elected as our new Disease Coordinator for Sjogren’s Syndrome!

Prof. Baldini has dedicated her career to investigate SS and support SS patients, she has been and still is very active and engaging with European and international initiatives focused on SS research.

ERN ReCONNET wishes her all the best for this important role and we look forward to work together!

As ERN ReCONNET, we are happy to support our Sjögren’s syndrome patient community by joining the forces to raise
awareness together on its awareness day.

Xavier Mariette
Disease Coordinator

Ana Vieira
ePAG representative

ERN ReCONNET @ EULAR2023: ePAG's Coraline Bouillot opinion (ENGLISH)

Chiara Baldini
Disease Coordinator

Coralie Bouillot
ePAG representative

ERN ReCONNET @ EULAR2023: ePAG's Coraline Bouillot opinion (FRENCH)


Sjögren’s essentials. Dr. Vasco Romao.

The oral component of Sjögren’s disease. Prof. Arjan Vissink.

How to explain Sjögren's syndrome to your family and friends. Prof. Eric Hachulla - ePAGs Ana Vieira and Coralie Bouillot.

Patients’ Organisations

ERN ReCONNET publications are available for consultation.



SS centres in ERN ReCONNET

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