ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
Europe Day
Europe Day held on 9 May every year celebrates peace and unity in Europe. The date marks the anniversary of the historic 'Schuman declaration' that set out his idea for a new form of political cooperation in Europe, which would make war between Europe's nations unthinkable. Schuman's proposal is considered to be…...
Commission launches the Critical Medicines Alliance to help prevent and address shortages of critical medicines
The European Commission's Health Emergency Preparedness and Response Authority (HERA), working with the Belgian Presidency of the Council of the EU, have today launched the Critical Medicines Alliance at the margins of the informal EPSCO Council meeting of health ministers, as part of the actions to build a strong European Health Union. The Alliance brings together national…...
MOOC “Health Data Ethics & Regulatory Frameworks in Rare Disease Research”
The Foundation For Rare Diseases in collaboration with Gianni Benzi Foundation, ERN EpiCARE and Eurordis Rare Diseases Europe, has codeveloped a MOOC (Massive Open Online Course) entitled “Health data ethics & regulatory frameworks in rare disease research”. This course is part of the European Joint Programme for Rare Diseases (EJPRD). The course is now open for registrations and can be accessed through…...
ERN ReCONNET – Endorsed Event: 43rd European Workshop for Rheumatology Research
It is with a great pleasure that ERN ReCONNET presents the 43rd European Workshop for Rheumatology Research (EWRR) that will be held for the first time in Genova, Italy, on May 9-11 2024. ERN ReCONNET has endorsed this important workshop, our Network experts are invited speakers and will be moderators of this event focused on…...
Conferenza Finale del progetto LIMeNar
ERN ReCONNET è official Collaborating Partner del progetto LIMeNar organizzato dall'Istituto Superiore di Sanità (ISS). Nell’ambito del Laboratorio di Health Humanities del Centro Nazionale Malattie Rare, a distanza di 8 anni dalla pubblicazione delle Linee di Indirizzo sulla medicina narrativa, l'ISS sta conducendo insieme alla Società Italiana di Medicina Narrativa (SIMeN) il progetto di ricerca "LIMeNar -…...
ERN ReCONNET would like to congratulate to our ePAG Ilaria Galetti for the European Pulmonary Fibrosis Federation (EU-PFF) Patient Advocacy Champion Award 2024. Ilaria was honored with this important award for her dedication and the impact she has truly made in the lives of those affected by Pulmonary Fibrosis. Congrats from all all of us, we are happy to…...
communication(at)ern-reconnet.eu
Europe Day
Europe Day held on 9 May every year celebrates peace and unity in Europe. The date marks the anniversary of the historic 'Schuman declaration' that set out his idea for a new form of political cooperation in Europe, which would make war between Europe's nations unthinkable. Schuman's proposal is considered to be…...
Commission launches the Critical Medicines Alliance to help prevent and address shortages of critical medicines
The European Commission's Health Emergency Preparedness and Response Authority (HERA), working with the Belgian Presidency of the Council of the EU, have today launched the Critical Medicines Alliance at the margins of the informal EPSCO Council meeting of health ministers, as part of the actions to build a strong European Health Union. The Alliance brings together national…...
MOOC “Health Data Ethics & Regulatory Frameworks in Rare Disease Research”
The Foundation For Rare Diseases in collaboration with Gianni Benzi Foundation, ERN EpiCARE and Eurordis Rare Diseases Europe, has codeveloped a MOOC (Massive Open Online Course) entitled “Health data ethics & regulatory frameworks in rare disease research”. This course is part of the European Joint Programme for Rare Diseases (EJPRD). The course is now open for registrations and can be accessed through…...
ERN ReCONNET – Endorsed Event: 43rd European Workshop for Rheumatology Research
It is with a great pleasure that ERN ReCONNET presents the 43rd European Workshop for Rheumatology Research (EWRR) that will be held for the first time in Genova, Italy, on May 9-11 2024. ERN ReCONNET has endorsed this important workshop, our Network experts are invited speakers and will be moderators of this event focused on…...
Conferenza Finale del progetto LIMeNar
ERN ReCONNET è official Collaborating Partner del progetto LIMeNar organizzato dall'Istituto Superiore di Sanità (ISS). Nell’ambito del Laboratorio di Health Humanities del Centro Nazionale Malattie Rare, a distanza di 8 anni dalla pubblicazione delle Linee di Indirizzo sulla medicina narrativa, l'ISS sta conducendo insieme alla Società Italiana di Medicina Narrativa (SIMeN) il progetto di ricerca "LIMeNar -…...
ERN ReCONNET would like to congratulate to our ePAG Ilaria Galetti for the European Pulmonary Fibrosis Federation (EU-PFF) Patient Advocacy Champion Award 2024. Ilaria was honored with this important award for her dedication and the impact she has truly made in the lives of those affected by Pulmonary Fibrosis. Congrats from all all of us, we are happy to…...
