ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
New Jardin website is now online!
JARDIN is a Joint Action (JA) created to achieve the integration of the ERNs into National Healthcare Systems (NHS). The EU has funded this pioneering 3-year project involving all Member States (MS) plus Norway and Ukraine with the specific aim of reducing the diagnostic odyssey through the improvement the ERNs accessibility for patients across Europe.…...
Take the new Rare Barometer survey on the impact of rare diseases on everyday life: Make your voice heard!
The new EURORDIS Rare Barometer survey on the impact of rare diseases on everyday life is now live! By asking questions on your participation in daily activities, such as school, leisure, and work, and on what you would need to live life at its fullest, EURORDIS will be able to advocate for people with a…...
EJP RD – Data Resources and Tools Knowledge Awareness
EJP RD is still gathering responses for its survey on the impact of Rare Diseases research resources and tools provided by the Network. As a valued member of the Rare Diseases research community, your feedback is crucial. This survey will help them understand and address the gaps in rare diseases research, guiding our future efforts…...
EJP RD Online Course “Innovative Therapies and Personalized Medicine for Rare Diseases”
Exciting News! The new European Joint Programme of Rare Diseases (EJP RD) course "Innovative Therapies and Personalized Medicine for Rare Diseases" is officially live. Explore cutting-edge advancements in gene therapy, regenerative medicine, and beyond. Be a part of the revolution in rare disease treatment! In this five-week course of the EJP RD, you will have…...
ERN ReCONNET joins the World Scleroderma Day 2024
For the second consecutive year, ERN ReCONNET is happy to join the World Scleroderma Day on June 29th. Follow us on our social media (LinkedIn X YouTube Instagram @Threads Facebook) to celebrate together the World Scleroderma Day! Systemic sclerosis (SSc) is an orphan disease systemic connective tissue disease characterised by autoimmunity, fibrosis of the skin, and internal organs and vasculopathy. Unfortunately…...
AN IMPORTANT ARTICLE FROM OUR EPAG, JEANATTE ANDERSEN!
Recently, our ERN ReCONNET ePAG representative for Systemic Lupus Erythematous (SLE), Jeanette Andersen, has co-authored an important article on children born to mothers with autoimmune rheumatic diseases published in a special edition on pregnancy of The Lancet Rheumatology, the world-leading public health journal. This scientific article shed a light on how maternal autoimmune rheumatic diseases can influence the…...
ern.reconnet(at)ao-pisa.toscana.it
New Jardin website is now online!
JARDIN is a Joint Action (JA) created to achieve the integration of the ERNs into National Healthcare Systems (NHS). The EU has funded this pioneering 3-year project involving all Member States (MS) plus Norway and Ukraine with the specific aim of reducing the diagnostic odyssey through the improvement the ERNs accessibility for patients across Europe.…...
Take the new Rare Barometer survey on the impact of rare diseases on everyday life: Make your voice heard!
The new EURORDIS Rare Barometer survey on the impact of rare diseases on everyday life is now live! By asking questions on your participation in daily activities, such as school, leisure, and work, and on what you would need to live life at its fullest, EURORDIS will be able to advocate for people with a…...
EJP RD – Data Resources and Tools Knowledge Awareness
EJP RD is still gathering responses for its survey on the impact of Rare Diseases research resources and tools provided by the Network. As a valued member of the Rare Diseases research community, your feedback is crucial. This survey will help them understand and address the gaps in rare diseases research, guiding our future efforts…...
EJP RD Online Course “Innovative Therapies and Personalized Medicine for Rare Diseases”
Exciting News! The new European Joint Programme of Rare Diseases (EJP RD) course "Innovative Therapies and Personalized Medicine for Rare Diseases" is officially live. Explore cutting-edge advancements in gene therapy, regenerative medicine, and beyond. Be a part of the revolution in rare disease treatment! In this five-week course of the EJP RD, you will have…...
ERN ReCONNET joins the World Scleroderma Day 2024
For the second consecutive year, ERN ReCONNET is happy to join the World Scleroderma Day on June 29th. Follow us on our social media (LinkedIn X YouTube Instagram @Threads Facebook) to celebrate together the World Scleroderma Day! Systemic sclerosis (SSc) is an orphan disease systemic connective tissue disease characterised by autoimmunity, fibrosis of the skin, and internal organs and vasculopathy. Unfortunately…...
AN IMPORTANT ARTICLE FROM OUR EPAG, JEANATTE ANDERSEN!
Recently, our ERN ReCONNET ePAG representative for Systemic Lupus Erythematous (SLE), Jeanette Andersen, has co-authored an important article on children born to mothers with autoimmune rheumatic diseases published in a special edition on pregnancy of The Lancet Rheumatology, the world-leading public health journal. This scientific article shed a light on how maternal autoimmune rheumatic diseases can influence the…...
