ERN ReCONNET Event: Good Practice Sharing Initiative

 In News

Save the date: Thursday May 30th 2024, from 15:00 to 17:00 CEST
ERN ReCONNET invites you all to join our event! 

This important event has been organized by the ERN ReCONNET Working Group Research and Quality of Care led by Dr. Rosaria Talarico, our Scientific Coordinator, and ePAG Ilaria Galetti.
Last year, the event was a great success and for this new edition we look forward to discuss with all the participants the following topics:

  • Introduction from the Chairs of the ERN ReCONNET Research and Quality of Care Working Group. R. Talarico, I. Galetti.
  • Nurse clinics organisation for wound care and pregnancy management. S. Gori, V. Venturini, M. Mosca, R. Talarico (AOU Pisa).
  • The ERN ReCONNET Relapsing Polychondritis (RP) Quality of Life (RP-QoL) assessment tool. L. Arnaud (Hôpitaux Universitaires de Strasbourg).
  • ScleroNet: A regional Systemic Sclerosis (SSc) management network. P. Canziani (Presidente GILS), C. Bellocchi (Foundation IRCCS Ca’ Granda Ospedale Maggiore Polyclinic – Milan), C. Campochiaro (IRCCS San Raffaele – Milan).
  • The institutional “response” to the ERN system, the Padua Model. G. Perilongo (AOU Padua).
  • Practical guidelines for the diagnosis and management of the Non-vascular Ehlers-Danlos Syndromes (EDS). G. Guichou (Hôpital Raymond Poincaré).

Agenda – Event: Sharing Good Practices Initiative (PDF)

Registration is open and free at this link.

The recording of the 1st ERN ReCONNET Good Practice Sharing Initiative event held in June 2023 can be seen here:

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