ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
The European Commission launches the 2026 Call for ERN Affiliated Partners
Rare and complex diseases affect millions of patients across Europe. Yet access to specialist expertise remains uneven. For healthcare providers in eligible countries, the 2026 Call launched by the European Commission for ERN Affiliated Partners represents a concrete opportunity to change that. What does it mean to be an ERN Affiliated Partner? Affiliated Partners…...
ERN flagship manuscript published in Orphanet Journal of Rare Diseases
27 to 36 million people in the EU live with a rare disease. For 8 years, European Reference Networks (ERNs) have been working to share knowledge and improve diagnosis and care for patients with rare and complex diseases. The ERN flagship manuscript has just been published in the Orphanet Journal of Rare Diseases, charting the journey…...
ERN ReCONNET joins IgG4-Related Disease Awareness Day
Today, ERN ReCONNET proudly joins the global community in recognizing IgG4-Related Disease (IgG4-RD) Awareness Day — an important occasion to shed light on a rare and often underdiagnosed condition. Did you know?It can take up to 10 years for a patient to receive a correct diagnosis of IgG4-Related Disease. IgG4-RD is a systemic fibroinflammatory disease…...ERN ReCONNET launches Call for Expressions of Interest for Supporting Partners
ERN ReCONNET launches Call for Expressions of Interest for Supporting Partners ERN ReCONNET is pleased to announce the launch of its Call for Expressions of Interest for Supporting Partners (SPs). This call is addressed to external stakeholders who are willing to actively contribute their expertise and bring added value to the Network’s activities on a…...New Endorsed events
ERN ReCONNET is pleased to announce the endorsement of two upcoming scientific meetings, further reinforcing its commitment to advancing knowledge, collaboration, and best practices in the field of rare and complex connective tissue diseases. The first endorsed event, the International Symposium on Sjögren’s Disease (ISSjD 2026), will be held from 29 September to 2 October…...
High-Level Conference on Patients’ rights on cross-border healthcare and the ERNs
The high-level conference “Patients’ rights on cross-border healthcare and the European Reference Networks” will take place on 26 March. This event will examine the progress made by the European Union in improving access to cross-border healthcare, while also addressing ongoing challenges related to awareness and effective use of these rights. Although EU citizens are entitled…...
ern.reconnet(at)ao-pisa.toscana.it
The European Commission launches the 2026 Call for ERN Affiliated Partners
Rare and complex diseases affect millions of patients across Europe. Yet access to specialist expertise remains uneven. For healthcare providers in eligible countries, the 2026 Call launched by the European Commission for ERN Affiliated Partners represents a concrete opportunity to change that. What does it mean to be an ERN Affiliated Partner? Affiliated Partners…...
ERN flagship manuscript published in Orphanet Journal of Rare Diseases
27 to 36 million people in the EU live with a rare disease. For 8 years, European Reference Networks (ERNs) have been working to share knowledge and improve diagnosis and care for patients with rare and complex diseases. The ERN flagship manuscript has just been published in the Orphanet Journal of Rare Diseases, charting the journey…...
ERN ReCONNET joins IgG4-Related Disease Awareness Day
Today, ERN ReCONNET proudly joins the global community in recognizing IgG4-Related Disease (IgG4-RD) Awareness Day — an important occasion to shed light on a rare and often underdiagnosed condition. Did you know?It can take up to 10 years for a patient to receive a correct diagnosis of IgG4-Related Disease. IgG4-RD is a systemic fibroinflammatory disease…...
ERN ReCONNET launches Call for Expressions of Interest for Supporting Partners
ERN ReCONNET launches Call for Expressions of Interest for Supporting Partners ERN ReCONNET is pleased to announce the launch of its Call for Expressions of Interest for Supporting Partners (SPs). This call is addressed to external stakeholders who are willing to actively contribute their expertise and bring added value to the Network’s activities on a…...
New Endorsed events
ERN ReCONNET is pleased to announce the endorsement of two upcoming scientific meetings, further reinforcing its commitment to advancing knowledge, collaboration, and best practices in the field of rare and complex connective tissue diseases. The first endorsed event, the International Symposium on Sjögren’s Disease (ISSjD 2026), will be held from 29 September to 2 October…...
High-Level Conference on Patients’ rights on cross-border healthcare and the ERNs
The high-level conference “Patients’ rights on cross-border healthcare and the European Reference Networks” will take place on 26 March. This event will examine the progress made by the European Union in improving access to cross-border healthcare, while also addressing ongoing challenges related to awareness and effective use of these rights. Although EU citizens are entitled…...
