ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET illuminates the Leaning Tower of Pisa for Rare Disease Day
ERN ReCONNET marked Rare Disease Day with a powerful and symbolic initiative by illuminating the iconic Leaning Tower of Pisa, transforming one of Europe’s most recognisable monuments into a beacon of awareness and solidarity. Set against the night sky, the illuminated tower conveyed a message that extends beyond architecture. Its distinctive tilt reflects themes of…...
ERN ReCONNET participates in the Transition in Rare Diseases Workshop in Ghent
ERN ReCONNET actively contributed to the Transition in Rare Diseases Workshop, held on 27–28 February 2026 in Ghent, Belgium. ERN ReCONNET was represented by Edoardo Marrani, Chiara Baldini, and Coralie Bouillot, who contributed to the cross-network dialogue and collaborative work toward improved transition care for people living with rare and complex connective tissue and…...
ERNs and Rare Diseases: Communication resources from DG SANTE
On the occasion of Rare Disease Day, DG SANTE has prepared a comprehensive communication package to support awareness and engagement around rare diseases and the ERNs. 🗓 The materials are available on the DG SANTE Rare Diseases and ERNs webpage: 🔗 https://bit.ly/40CfVJr ➡️ Please check the “Latest Updates” and “Highlights” sections. 📚 The…...
ERN ReCONNET shares patient stories collected through the JARDIN Joint Action
During Rare Disease Month, ERN ReCONNET is pleased to highlight three powerful patient stories collected within the framework of the JARDIN Joint Action. These testimonies give voice to people living with rare and complex connective tissue and musculoskeletal diseases and underline the importance of coordinated, expert care across Europe. Through their personal journeys, Coralie, Olgaand Lotta,…...
ERN ReCONNET launches the 2026 Webinar Calendar: a full year of free education for the rCTDs community
To mark the start of the new season, Prof. Maurizio Cutolo introduces the 2026 programme in a short video message, highlighting the educational vision behind the webinars and the importance of shared knowledge and patient partnership. Watch the video launch by Prof. Cutolo: http://www.youtube.com/watch?v=ABCDEFGHIJK&width=400&height=250 "A new year of learning, collaboration, and shared expertise begins with the…...New 2026 ERN ReCONNET endorsed events
ERN ReCONNET is pleased to announce the first series of scientific and educational events endorsed for 2026. These meetings reflect our continued commitment to fostering collaboration, advancing knowledge, and improving care for patients with rare and complex connective tissue diseases across Europe. The events endorsed to date are: 39th French Systemic Scleroderma Workshops: 4th –…...
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET illuminates the Leaning Tower of Pisa for Rare Disease Day
ERN ReCONNET marked Rare Disease Day with a powerful and symbolic initiative by illuminating the iconic Leaning Tower of Pisa, transforming one of Europe’s most recognisable monuments into a beacon of awareness and solidarity. Set against the night sky, the illuminated tower conveyed a message that extends beyond architecture. Its distinctive tilt reflects themes of…...
ERN ReCONNET participates in the Transition in Rare Diseases Workshop in Ghent
ERN ReCONNET actively contributed to the Transition in Rare Diseases Workshop, held on 27–28 February 2026 in Ghent, Belgium. ERN ReCONNET was represented by Edoardo Marrani, Chiara Baldini, and Coralie Bouillot, who contributed to the cross-network dialogue and collaborative work toward improved transition care for people living with rare and complex connective tissue and…...
ERNs and Rare Diseases: Communication resources from DG SANTE
On the occasion of Rare Disease Day, DG SANTE has prepared a comprehensive communication package to support awareness and engagement around rare diseases and the ERNs. 🗓 The materials are available on the DG SANTE Rare Diseases and ERNs webpage: 🔗 https://bit.ly/40CfVJr ➡️ Please check the “Latest Updates” and “Highlights” sections. 📚 The…...
ERN ReCONNET shares patient stories collected through the JARDIN Joint Action
During Rare Disease Month, ERN ReCONNET is pleased to highlight three powerful patient stories collected within the framework of the JARDIN Joint Action. These testimonies give voice to people living with rare and complex connective tissue and musculoskeletal diseases and underline the importance of coordinated, expert care across Europe. Through their personal journeys, Coralie, Olgaand Lotta,…...
ERN ReCONNET launches the 2026 Webinar Calendar: a full year of free education for the rCTDs community
To mark the start of the new season, Prof. Maurizio Cutolo introduces the 2026 programme in a short video message, highlighting the educational vision behind the webinars and the importance of shared knowledge and patient partnership. Watch the video launch by Prof. Cutolo: http://www.youtube.com/watch?v=ABCDEFGHIJK&width=400&height=250 "A new year of learning, collaboration, and shared expertise begins with the…...
New 2026 ERN ReCONNET endorsed events
ERN ReCONNET is pleased to announce the first series of scientific and educational events endorsed for 2026. These meetings reflect our continued commitment to fostering collaboration, advancing knowledge, and improving care for patients with rare and complex connective tissue diseases across Europe. The events endorsed to date are: 39th French Systemic Scleroderma Workshops: 4th –…...
