ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
ERN RECONNET – NEWSLETTER N. 26: SEPTEMBER EDITION
The new ERN ReCONNET Newsletter n. 26 – SEPTEMBER EDITION – is out! Here is a list of our last news for this amazing new edition: 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases New ERN ReCONNET Disease Coordinators ERN ReCONNET at the ACR 2024 ERN ReCONNET Exchange Program - Update ERN ReCONNET Webinars (Season…...
Newborn Screening (NBS) Awareness Month
In the US, during 1950s-1960s Dr. Robert Guthrie developed a paper blood spot card test as a new assay to screen newborns for phenylketonuria, PKU: The Newborn Screening (NBS) test was born. His pioneer work defined the beginning of the NBS programs that led to early diagnosis of children with genetic conditions (like PKU, a…...
ERN ReCONNET Infographic on Videocapillaroscopy
The ERN ReCONNET Education and Training Working Group (WG) is glad to release its new flyer on nailfold videocapillaroscopy (NVC), a new and informative document targeting patients and lay audience aimed at explaining such an important diagnostic approach. The document was developed by the Network under the leadership of Prof. Maurizio Cutolo from IRCSS –…...
ERN ReCONNET at the ACR 2024
ERN ReCONNET is very honored to be at the ACR Convergence 2024 that will take place November 14 – 19 at the Walter E. Washington Convention Center in Washington, D.C.! The ERN ReCONNET Coordination Team will be at Booth number 2101. Stop by to say hi, to chat with us, and to meet with other…...
New ePAGs Advocates joined the ERN ReCONNET
ERN ReCONNET is a growing Network and we are pleased to announce our new ePAG advocates that recently have joined us following the addition of Jose Ballarin in June. Those women will further strengthen our actions and impact across Europe on behalf of rare patients. Thank you and welcome on board! The Network welcomes Olga…...
ERN ReCONNET New Disease Coordinators
The ERN ReCONNET has elected its new Disease Coordinators that will lead the activities and actions of the Ehlers-Danlos syndromes (EDS) and the Sjögren’s Syndrome* (SS) disease groups. The elections saw a huge participation among the Network members and as ERN ReCONNET we congratulate with Dr. Marco Castori from the Fondazione IRCCS-Casa Sollievo della Sofferenza, San…...
communication(at)ern-reconnet.eu
ERN RECONNET – NEWSLETTER N. 26: SEPTEMBER EDITION
The new ERN ReCONNET Newsletter n. 26 – SEPTEMBER EDITION – is out! Here is a list of our last news for this amazing new edition: 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases New ERN ReCONNET Disease Coordinators ERN ReCONNET at the ACR 2024 ERN ReCONNET Exchange Program - Update ERN ReCONNET Webinars (Season…...
Newborn Screening (NBS) Awareness Month
In the US, during 1950s-1960s Dr. Robert Guthrie developed a paper blood spot card test as a new assay to screen newborns for phenylketonuria, PKU: The Newborn Screening (NBS) test was born. His pioneer work defined the beginning of the NBS programs that led to early diagnosis of children with genetic conditions (like PKU, a…...
ERN ReCONNET Infographic on Videocapillaroscopy
The ERN ReCONNET Education and Training Working Group (WG) is glad to release its new flyer on nailfold videocapillaroscopy (NVC), a new and informative document targeting patients and lay audience aimed at explaining such an important diagnostic approach. The document was developed by the Network under the leadership of Prof. Maurizio Cutolo from IRCSS –…...
ERN ReCONNET at the ACR 2024
ERN ReCONNET is very honored to be at the ACR Convergence 2024 that will take place November 14 – 19 at the Walter E. Washington Convention Center in Washington, D.C.! The ERN ReCONNET Coordination Team will be at Booth number 2101. Stop by to say hi, to chat with us, and to meet with other…...
New ePAGs Advocates joined the ERN ReCONNET
ERN ReCONNET is a growing Network and we are pleased to announce our new ePAG advocates that recently have joined us following the addition of Jose Ballarin in June. Those women will further strengthen our actions and impact across Europe on behalf of rare patients. Thank you and welcome on board! The Network welcomes Olga…...
ERN ReCONNET New Disease Coordinators
The ERN ReCONNET has elected its new Disease Coordinators that will lead the activities and actions of the Ehlers-Danlos syndromes (EDS) and the Sjögren’s Syndrome* (SS) disease groups. The elections saw a huge participation among the Network members and as ERN ReCONNET we congratulate with Dr. Marco Castori from the Fondazione IRCCS-Casa Sollievo della Sofferenza, San…...
