ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET Launches EU-Wide Survey on Self-Management of Digital Ulcers in Systemic Sclerosis
ERN ReCONNET has just launched a new survey focused on the assessment and self-management of digital lesions (including digital ulcers) in people living with systemic sclerosis (SSc). Digital ulcers are a frequent and challenging complication of SSc, and understanding how patients manage these lesions in their daily lives is essential to improving care across Europe.…...Register now – ERN ReCONNET 2025 Sharing Good Practice Initiative
📣 Registration Open for the 3rd ERN ReCONNET Sharing Good Practice Initiative The ERN ReCONNET Working Group on Research and Quality of Care is pleased to announce the third edition of the “Sharing Good Practice Initiative”, which will take place online on 1st December 2025 from 15:00 to 17:00 CET. Following the success of…...
Newly Elected ERN ReCONNET Disease Coordinators
ERN ReCONNET is pleased to announce the results of the recent elections for the network’s Disease Coordinators for the upcoming mandate. This election cycle recorded an exceptionally high level of participation from the Board of Network, reflecting the strong engagement and commitment of our Network. ERN ReCONNET extends its sincere appreciation to all those who…...
ERN ReCONNET Holds Transition Training Workshop in Ljubljana to Advance Curriculum Development for Transition of Care in Rheumatology
Ljubljana, Slovenia – 13–14 November 2025 ERN ReCONNET successfully hosted a two-day Transition Training Workshop in Ljubljana dedicated to developing a shared European curriculum for improving the transition of care for adolescents and young adults living with rare and complex connective tissue and musculoskeletal diseases (rCTDs). The workshop, titled “Developing the ERN ReCONNET Curriculum for…...
ERN ReCONNET Transition of care Survey
Your Experience Can Help Improve Care Across Europe: participate now in the ERN ReCONNET Transition Survey ERN ReCONNET has launched a European-wide survey to better understand the transition process from paediatric to adult healthcare for people living with rare connective tissue diseases (rCTDs). Why this survey matters Transitioning from paediatric to adult care…...
Read the latest ERN ReCONNET Newsletter n. 29 – July edition
📢 The new ERN ReCONNET Newsletter n. 29 – JULY EDITION – is out! Dive into the latest updates, exciting developments, and upcoming initiatives from the ERN ReCONNET community. Here’s what you’ll find in this edition: 🔹 CPMS 2.0 Launch Webinar – A milestone for virtual cross-border collaboration in rare diseases🔹 Election of the New…...
ern.reconnet(at)ao-pisa.toscana.it
ERN ReCONNET Launches EU-Wide Survey on Self-Management of Digital Ulcers in Systemic Sclerosis
ERN ReCONNET has just launched a new survey focused on the assessment and self-management of digital lesions (including digital ulcers) in people living with systemic sclerosis (SSc). Digital ulcers are a frequent and challenging complication of SSc, and understanding how patients manage these lesions in their daily lives is essential to improving care across Europe.…...
Register now – ERN ReCONNET 2025 Sharing Good Practice Initiative
📣 Registration Open for the 3rd ERN ReCONNET Sharing Good Practice Initiative The ERN ReCONNET Working Group on Research and Quality of Care is pleased to announce the third edition of the “Sharing Good Practice Initiative”, which will take place online on 1st December 2025 from 15:00 to 17:00 CET. Following the success of…...
Newly Elected ERN ReCONNET Disease Coordinators
ERN ReCONNET is pleased to announce the results of the recent elections for the network’s Disease Coordinators for the upcoming mandate. This election cycle recorded an exceptionally high level of participation from the Board of Network, reflecting the strong engagement and commitment of our Network. ERN ReCONNET extends its sincere appreciation to all those who…...
ERN ReCONNET Holds Transition Training Workshop in Ljubljana to Advance Curriculum Development for Transition of Care in Rheumatology
Ljubljana, Slovenia – 13–14 November 2025 ERN ReCONNET successfully hosted a two-day Transition Training Workshop in Ljubljana dedicated to developing a shared European curriculum for improving the transition of care for adolescents and young adults living with rare and complex connective tissue and musculoskeletal diseases (rCTDs). The workshop, titled “Developing the ERN ReCONNET Curriculum for…...
ERN ReCONNET Transition of care Survey
Your Experience Can Help Improve Care Across Europe: participate now in the ERN ReCONNET Transition Survey ERN ReCONNET has launched a European-wide survey to better understand the transition process from paediatric to adult healthcare for people living with rare connective tissue diseases (rCTDs). Why this survey matters Transitioning from paediatric to adult care…...
Read the latest ERN ReCONNET Newsletter n. 29 – July edition
📢 The new ERN ReCONNET Newsletter n. 29 – JULY EDITION – is out! Dive into the latest updates, exciting developments, and upcoming initiatives from the ERN ReCONNET community. Here’s what you’ll find in this edition: 🔹 CPMS 2.0 Launch Webinar – A milestone for virtual cross-border collaboration in rare diseases🔹 Election of the New…...
