ERN ReCONNET
Events & Media
Past and future meetings, conferences, congresses.
News
News from relevant stakeholders on health and rare diseases. Take a look at it and start to engage with the initiatives enlisted here.
If you have a news that you would like us to share, please send us an email to:
communication(at)ern-reconnet.eu
EJP RD Online Course “Innovative Therapies and Personalized Medicine for Rare Diseases”
Exciting News! The new European Joint Programme of Rare Diseases (EJP RD) course "Innovative Therapies and Personalized Medicine for Rare Diseases" is officially live. Explore cutting-edge advancements in gene therapy, regenerative medicine, and beyond. Be a part of the revolution in rare disease treatment! In this five-week course of the EJP RD, you will have…...
ERN ReCONNET joins the World Scleroderma Day 2024
For the second consecutive year, ERN ReCONNET is happy to join the World Scleroderma Day on June 29th. Follow us on our social media (LinkedIn X YouTube Instagram @Threads Facebook) to celebrate together the World Scleroderma Day! Systemic sclerosis (SSc) is an orphan disease systemic connective tissue disease characterised by autoimmunity, fibrosis of the skin, and internal organs and vasculopathy. Unfortunately…...
AN IMPORTANT ARTICLE FROM OUR EPAG, JEANATTE ANDERSEN!
Recently, our ERN ReCONNET ePAG representative for Systemic Lupus Erythematous (SLE), Jeanette Andersen, has co-authored an important article on children born to mothers with autoimmune rheumatic diseases published in a special edition on pregnancy of The Lancet Rheumatology, the world-leading public health journal. This scientific article shed a light on how maternal autoimmune rheumatic diseases can influence the…...
EURORDIS Webinar: Rare Barometer survey on the impact of rare diseases on everyday life
On Wednesday 10 July at 2.30 pm CEST, Rare Barometer, the global survey initiative of EURORDIS – Rare Diseases Europe, will launch a new survey on the impact of rare diseases on everyday life. The survey will be open to all people living with any rare disease and their family members worldwide and will be available…...
The paediatric Patient Expert Group (PEG)
Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, giant cell arteritis) or multiple sclerosis? Are you interested in getting the skills to actively participate in scientific research to contribute to developing and shape the themes of health, rare…...
New articles from our ePAG, Dr. Silvia Aguilera!
Recently, our ERN ReCONNET ePAG representative for Antiphospholipid Syndrome (APS), Dr. Silvia Aguilera, has published a very interesting article in a special edition on pregnancy of The Lancet Rheumatology, the world-leading public health journal, on the challenges of designing and conducting cohort studies and clinical trials in pregnant populations. In particular, the "Challenges of designing and…...
communication(at)ern-reconnet.eu
EJP RD Online Course “Innovative Therapies and Personalized Medicine for Rare Diseases”
Exciting News! The new European Joint Programme of Rare Diseases (EJP RD) course "Innovative Therapies and Personalized Medicine for Rare Diseases" is officially live. Explore cutting-edge advancements in gene therapy, regenerative medicine, and beyond. Be a part of the revolution in rare disease treatment! In this five-week course of the EJP RD, you will have…...
ERN ReCONNET joins the World Scleroderma Day 2024
For the second consecutive year, ERN ReCONNET is happy to join the World Scleroderma Day on June 29th. Follow us on our social media (LinkedIn X YouTube Instagram @Threads Facebook) to celebrate together the World Scleroderma Day! Systemic sclerosis (SSc) is an orphan disease systemic connective tissue disease characterised by autoimmunity, fibrosis of the skin, and internal organs and vasculopathy. Unfortunately…...
AN IMPORTANT ARTICLE FROM OUR EPAG, JEANATTE ANDERSEN!
Recently, our ERN ReCONNET ePAG representative for Systemic Lupus Erythematous (SLE), Jeanette Andersen, has co-authored an important article on children born to mothers with autoimmune rheumatic diseases published in a special edition on pregnancy of The Lancet Rheumatology, the world-leading public health journal. This scientific article shed a light on how maternal autoimmune rheumatic diseases can influence the…...
EURORDIS Webinar: Rare Barometer survey on the impact of rare diseases on everyday life
On Wednesday 10 July at 2.30 pm CEST, Rare Barometer, the global survey initiative of EURORDIS – Rare Diseases Europe, will launch a new survey on the impact of rare diseases on everyday life. The survey will be open to all people living with any rare disease and their family members worldwide and will be available…...
The paediatric Patient Expert Group (PEG)
Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, giant cell arteritis) or multiple sclerosis? Are you interested in getting the skills to actively participate in scientific research to contribute to developing and shape the themes of health, rare…...
New articles from our ePAG, Dr. Silvia Aguilera!
Recently, our ERN ReCONNET ePAG representative for Antiphospholipid Syndrome (APS), Dr. Silvia Aguilera, has published a very interesting article in a special edition on pregnancy of The Lancet Rheumatology, the world-leading public health journal, on the challenges of designing and conducting cohort studies and clinical trials in pregnant populations. In particular, the "Challenges of designing and…...
