ERN ReCONNET joined the “Day of the Zebra”
Since last year, ERN ReCONNET decided to join some international awareness days to raise awareness of relevant matters related to the healthcare ecosystem. As Network, we believe it is important [...]
EPH Conference
The main theme of the 17th EPH Conference Lisbon 2024 is: Sailing the waves of European public health: exploring a sea of innovation This year’s conference theme encapsulates the EPH collective [...]
EMA webinar for RDD: Orphan medicines development – ask the European regulator
The EMA’s Orphan Medicines Office is hosting an interactive webinar Rare Disease Day on 29 February 2024, to answer questions that developers of products for rare diseases or researchers in this [...]
Drug repurposing for rare: progress and opportunities for the rare disease community
An interesting IRDiRC paper on a hot topic: Drug Repurposing. The article can be downloaded here 2024 – Jonker et al. Drug repurposing for rare progress and opportunities for the rare [...]
ERN RECONNET – ENDORSED EVENT: The 5th International Symposium on IgG4 – Related Disease
VIDEO PILLS with PROF. EMANUEL DELLA TORRE where he introduces the Symposium and why the ERN ReCONNET endorsement is important are available in English and Italian. It is with a great [...]
EUROPE RARE DISEASE SUMMIT 2024
The second edition of the Europe Rare Disease Summit, set to take place on February 14th in Madrid, Spain. This is an in-person event aimed at improving and learning about Government Plans, [...]
Neurological Disorders and the European Reference Networks webinar
EpiCARE ERN, EURO NMD, ERN Ithaca & ERN RND have organized this interesting webinar focused on Neurological Disorders and the ERNs approach. Get this chance to get a deep dive into this world [...]
“Real-World data, Machine learning and Deep analytics in rare diseases” webinar
The European Joint Programme on Rare Diseases is organizing the training webinar: “Real-World data, Machine learning and Deep analytics in rare diseases: Regulatory grade data collection [...]
EULAR 2024 | CONGRESS ABSTRACT SUBMISSION
EULAR invites you to submit an abstract to EULAR 2024, the European Congress of Rheumatology. Every year EULAR invites abstract submitters from all over the globe to present their work at the [...]
Nature Article: Rare-disease researchers pioneer a unique approach to clinical trials
An important Nature article on the randomization and placebo groups studies, biomarkers, real-world data from wearables, and multi-center and adaptive trials in rare diseases written by Mike May. [...]
