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  • Diseases
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    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s disease
    • Systemic Lupus Erythematosus
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      • SSc lay version
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      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Zoe Karakikla-Mitsakou
      • Luciu Ramona
      • Matthews Lisa
      • Alexander Patsalias
      • Schlüter Silke
      • Jamy Scheerhoorn-Pullen
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
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      • Patients Organisations SjD
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Virtual consultations – CPMS 2.0
    • ERN ReCONNET e-Learning Accredited Course on rCTDs
    • Registry
    • ERN ReCONNET Exchange Programme
    • Webinars
    • Publications
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Monitoring
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    • Documents
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
  • Network
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ERN ReCONNET ERN ReCONNET
  • Home
  • Disease_SSc
  •   Login CPMS
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s disease
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
  • Disease_IIMs
  • Subscribe to our Newsletter
  • Contact Us
  • Disease_APS
  • Disease_UCTD
  • Disease_IgG4
  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Zoe Karakikla-Mitsakou
      • Luciu Ramona
      • Matthews Lisa
      • Alexander Patsalias
      • Schlüter Silke
      • Jamy Scheerhoorn-Pullen
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SjD
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Virtual consultations – CPMS 2.0
    • ERN ReCONNET e-Learning Accredited Course on rCTDs
    • Registry
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    • Webinars
    • Publications
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Monitoring
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    • Documents
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
  • Network
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Archives

Monthly Archive for: "March, 2026"
Home /
 New Endorsed events
0
By reconnet
In News
Posted March 17, 2026

New Endorsed events

ERN ReCONNET is pleased to announce the endorsement of two upcoming scientific meetings, further reinforcing its commitment to advancing knowledge, collaboration, and best practices in the field [...]

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 High-Level Conference on Patients’ rights on cross-border healthcare and the ERNs
0
By reconnet
In News
Posted March 17, 2026

High-Level Conference on Patients’ rights on cross-border healthcare and the ERNs

The high-level conference “Patients’ rights on cross-border healthcare and the European Reference Networks” will take place on 26 March. This event will examine the progress made by the European [...]

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 ERN ReCONNET Special issue Newsletter – Rare Disease Day 2026
0
By reconnet
In Newsletter
Posted March 13, 2026

ERN ReCONNET Special issue Newsletter – Rare Disease Day 2026

Discover ERN ReCONNET’s latest special newsletter issue dedicated to Rare Disease Day, bringing together highlights and resources that support awareness and collaboration across the rare disease [...]

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 ERN ReCONNET illuminates the Leaning Tower of Pisa for Rare Disease Day
0
By reconnet
In News
Posted March 2, 2026

ERN ReCONNET illuminates the Leaning Tower of Pisa for Rare Disease Day

ERN ReCONNET marked Rare Disease Day with a powerful and symbolic initiative by illuminating the iconic Leaning Tower of Pisa, transforming one of Europe’s most recognisable monuments into a [...]

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 ERN ReCONNET participates in the Transition in Rare Diseases Workshop in Ghent
0
By reconnet
In News
Posted March 2, 2026

ERN ReCONNET participates in the Transition in Rare Diseases Workshop in Ghent

  ERN ReCONNET actively contributed to the Transition in Rare Diseases Workshop, held on 27–28 February 2026 in Ghent, Belgium. ERN ReCONNET was represented by Edoardo Marrani, Chiara [...]

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 ERNs and Rare Diseases: Communication resources from DG SANTE
0
By reconnet
In News
Posted March 2, 2026

ERNs and Rare Diseases: Communication resources from DG SANTE

On the occasion of Rare Disease Day, DG SANTE has prepared a comprehensive communication package to support awareness and engagement around rare diseases and the ERNs.   🗓 The materials are [...]

READ MORE
ERN ReCONNET
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ERN ReCONNET is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are funded by the European Union. The content of this publication represents the views of the authors only and it is their sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Health and Digital Executive Agency (HaDEA) or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

menu
  • Home
  • Disease_SSc
  •   Login CPMS
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s disease
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
  • Disease_IIMs
  • Subscribe to our Newsletter
  • Contact Us
  • Disease_APS
  • Disease_UCTD
  • Disease_IgG4
  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Zoe Karakikla-Mitsakou
      • Luciu Ramona
      • Matthews Lisa
      • Alexander Patsalias
      • Schlüter Silke
      • Jamy Scheerhoorn-Pullen
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SjD
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Virtual consultations – CPMS 2.0
    • ERN ReCONNET e-Learning Accredited Course on rCTDs
    • Registry
    • ERN ReCONNET Exchange Programme
    • Webinars
    • Publications
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Monitoring
    • RarERN Path
    • Documents
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
  • Network
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • WG Education and Training
      • WG Patients’ Partnership
      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
      • TF Pregnancy
    • ERN ReCONNET Coordination Team
    • External collaborating Experts
    • JARDIN Joint Action
  • News
    • News
    • Dissemination materials
    • ERN ReCONNET Videos
    • ERN ReCONNET @ Meetings
    • ERN ReCONNET across press media
    • Newsletter
    • Useful links
  • COVID-19
    • ERN-ReCONNET
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