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On Wednesday 10 July at 2.30 pm CEST, Rare Barometer, the global survey initiative of EURORDIS – Rare Diseases Europe, will launch a new survey on the impact of rare diseases on everyday life. [...]

Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, [...]

Recently, our ERN ReCONNET ePAG representative for Antiphospholipid Syndrome (APS), Dr. Silvia Aguilera, has published a very interesting article in a special edition on pregnancy of The Lancet [...]

ERN ReCONNET è felice di poter condividere con tutti voi, la sua partecipazione all’evento organizzato per oggi dal Ministero della Salute a Roma, focalizzato sul progetto Jardin (JA) [...]

The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and it will be hosted by MetabERN. The aim of the ERICA [...]

The EJP RD end-user Training Webinar is scheduled on June 26th, 2024 from 10:00-12:00 CEST.  This free online training is intended for potential users of the EJP RD Virtual Platform (VP) that is [...]

Accessing healthcare across national borders has been a long-standing issue for people with rare diseases. The primary reason for this is that these patients live across Europe, but – due to the [...]

EJP RD proudly announces two ground-breaking publications that help pave the way for the future of research data sharing and information governance 1) Getting your DUCs in a row – standardising [...]

The European Health and Digital Executive Agency (HaDEA) has signed 24 multi-annual grant agreements with the ERNs for a total contribution of over €77 million for the period October 2023 – [...]

The EULAR 2024 Congress will be held onsite, in Vienna, Austria. The EULAR 2024 Congress will offer a cutting-edge congress experience that will only be enhanced by the outstanding celebrations [...]