ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases
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  • Home
  • Disease_SSc
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  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s syndrome
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
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  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Luciu Ramona
      • Matthews Lisa
      • Alexander Patsalias
      • Schlüter Silke
      • Jamy Scheerhoorn-Pullen
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SS
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Virtual consultations – CPMS 2.0
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
    • Webinars
    • Publications
    • Documents
    • RarERN Path
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Exchange Programme
    • Registry
    • Monitoring
  • Network
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • WG Education and Training
      • WG Patients’ Partnership
      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
      • TF Pregnancy
    • ERN ReCONNET Coordination Team
    • External collaborating Experts
    • JARDIN Joint Action
  • News
    • News
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ERN ReCONNET ERN ReCONNET
  • Home
  • Disease_SSc
  •   Login CPMS
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s syndrome
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
  • Disease_IIMs
  • Subscribe to our Newsletter
  • Contact Us
  • Disease_APS
  • Disease_UCTD
  • Disease_IgG4
  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Luciu Ramona
      • Matthews Lisa
      • Alexander Patsalias
      • Schlüter Silke
      • Jamy Scheerhoorn-Pullen
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SS
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Virtual consultations – CPMS 2.0
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
    • Webinars
    • Publications
    • Documents
    • RarERN Path
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Exchange Programme
    • Registry
    • Monitoring
  • Network
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • WG Education and Training
      • WG Patients’ Partnership
      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
      • TF Pregnancy
    • ERN ReCONNET Coordination Team
    • External collaborating Experts
    • JARDIN Joint Action
  • News
    • News
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Archives

Author Archive for: "reconnet"
Home / (Page 8)
 EU4Health: Survey on current and future health priorities
0
By reconnet
In News
Posted April 24, 2024

EU4Health: Survey on current and future health priorities

Targeted Consultation on EU4Health: have your say on future priorities, orientations and needs Help shape the direction of the #EU4Health funding programme for 2025! As we reach the mid-point of [...]

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 European Health Data Space
0
By reconnet
In News
Posted April 24, 2024

European Health Data Space

The European Health Data Space (EHDS) will be a key pillar of the strong European Health Union. and is the first common EU data space in a specific area to emerge from the European strategy for [...]

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 Share4Rare webinar on the 2024 research project call
0
By reconnet
In News
Posted April 24, 2024

Share4Rare webinar on the 2024 research project call

Share4Rare will host a webinar (in English) Thursday, May 9th at 4:00 pm on the 2024 research project call. Share4Rare aims to enhance research on rare diseases through collaborative knowledge [...]

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 12th European Conference on Rare Diseases and Orphan Products
0
By reconnet
In News
Posted April 15, 2024

12th European Conference on Rare Diseases and Orphan Products

ERN ReCONNET is proud to announce to be an ECRD 2024 Associated Partner! The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. The event is coming up soon, [...]

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 ERICA Webinar: c4c trials, education and training
0
By reconnet
In News
Posted April 9, 2024

ERICA Webinar: c4c trials, education and training

This webinar is organized by ERICA in collaboration with conect4children,  EJP RD, and ERN BOND and it is scheduled for April 11th at 13:00 CEST. The webinar will be introduced by Prof. Mark [...]

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 Share4Rare: Medical books
0
By reconnet
In News
Posted April 4, 2024

Share4Rare: Medical books

Share4Rare is a project aimed at making a difference in rare diseases, where the entire community gathered by patients, carers, clinicians, and researchers, join forces. Share4Rare is funded by a [...]

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 ERN ReCONNET Transition of Care Task Force
0
By reconnet
In News
Posted March 25, 2024

ERN ReCONNET Transition of Care Task Force

ERN ReCONNET is the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (rCTDs) is dedicated to improving rCTDs patient care across Europe. As part of [...]

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 International Women’s Day
0
By reconnet
In Dissemination materials
Posted March 8, 2024

International Women’s Day

ERN ReCONNET recognizes the value of women in our society and in our Network. Thank you all for what you do! 

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 ERN RECONNET – ENDORSED EVENT: II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES
0
By reconnet
In News
Posted March 4, 2024

ERN RECONNET – ENDORSED EVENT: II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES

ERN ReCONNET is pleased to present the II XUEC CONFERENCE ON SYSTEMIC AUTOIMMUNE MINORITARY DISEASES that will be held in Barcelona – Spain, on February 21st, 2024. ERN ReCONNET has [...]

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 ERN RECONNET – NEWSLETTER N. 24: Light Up initiative for the Rare Disease Day 2024
0
By reconnet
In Newsletter
Posted March 1, 2024

ERN RECONNET – NEWSLETTER N. 24: Light Up initiative for the Rare Disease Day 2024

ERN RECONNET JOINS THE LIGHT UP INITIATIVE FOR THE RARE DISEASE DAY (RDD 2024) In this ERN ReCONNET Newsletter n. 24, the Network is happy to share with you the creation of this virtual bridge [...]

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ERN ReCONNET
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ERN ReCONNET is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are funded by the European Union. The content of this publication represents the views of the authors only and it is their sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Health and Digital Executive Agency (HaDEA) or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

menu
  • Home
  • Disease_SSc
  •   Login CPMS
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s syndrome
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
  • Disease_IIMs
  • Subscribe to our Newsletter
  • Contact Us
  • Disease_APS
  • Disease_UCTD
  • Disease_IgG4
  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Luciu Ramona
      • Matthews Lisa
      • Alexander Patsalias
      • Schlüter Silke
      • Jamy Scheerhoorn-Pullen
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SS
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Virtual consultations – CPMS 2.0
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
    • Webinars
    • Publications
    • Documents
    • RarERN Path
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
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