Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, [...]
Recently, our ERN ReCONNET ePAG representative for Antiphospholipid Syndrome (APS), Dr. Silvia Aguilera, has published a very interesting article in a special edition on pregnancy of The Lancet [...]
ERN ReCONNET è felice di poter condividere con tutti voi, la sua partecipazione all’evento organizzato per oggi dal Ministero della Salute a Roma, focalizzato sul progetto Jardin (JA) [...]
The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and it will be hosted by MetabERN. The aim of the ERICA [...]
The EJP RD end-user Training Webinar is scheduled on June 26th, 2024 from 10:00-12:00 CEST. This free online training is intended for potential users of the EJP RD Virtual Platform (VP) that is [...]
Accessing healthcare across national borders has been a long-standing issue for people with rare diseases. The primary reason for this is that these patients live across Europe, but – due to the [...]
EJP RD proudly announces two ground-breaking publications that help pave the way for the future of research data sharing and information governance 1) Getting your DUCs in a row – standardising [...]
The European Health and Digital Executive Agency (HaDEA) has signed 24 multi-annual grant agreements with the ERNs for a total contribution of over €77 million for the period October 2023 – [...]
The EULAR 2024 Congress will be held onsite, in Vienna, Austria. The EULAR 2024 Congress will offer a cutting-edge congress experience that will only be enhanced by the outstanding celebrations [...]
At the Seventy-seventh World Health Assembly, Member States endorsed a resolution (PDF doc to be downloaded WHO Resolution – Public Health Engagement) to implement, strengthen and sustain [...]