News

The 6th Mental Health & Wellbeing Webinar: ‘How to deliver a diagnosis’ webinar organized by EURORDIS is scheduled for Oct. 23rd 2024 – from 2.00 pm to 3.30 pm CET. The ERN ReCONNET will be [...]

JARDIN is a Joint Action (JA) created to achieve the integration of the ERNs into National Healthcare Systems (NHS). The EU has funded this pioneering 3-year project involving all Member States [...]

The new EURORDIS Rare Barometer survey on the impact of rare diseases on everyday life is now live! By asking questions on your participation in daily activities, such as school, leisure, and [...]

EJP RD is still gathering responses for its survey on the impact of Rare Diseases research resources and tools provided by the Network. As a valued member of the Rare Diseases research community, [...]

Exciting News! The new European Joint Programme of Rare Diseases (EJP RD) course “Innovative Therapies and Personalized Medicine for Rare Diseases” is officially live. Explore [...]

For the second consecutive year, ERN ReCONNET is happy to join the World Scleroderma Day on June 29th. Follow us on our social media (LinkedIn X YouTube Instagram @Threads Facebook) to celebrate [...]

Recently, our ERN ReCONNET ePAG representative for Systemic Lupus Erythematous (SLE), Jeanette Andersen, has co-authored an important article on children born to mothers with autoimmune rheumatic [...]

On Wednesday 10 July at 2.30 pm CEST, Rare Barometer, the global survey initiative of EURORDIS – Rare Diseases Europe, will launch a new survey on the impact of rare diseases on everyday life. [...]

Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, [...]

Recently, our ERN ReCONNET ePAG representative for Antiphospholipid Syndrome (APS), Dr. Silvia Aguilera, has published a very interesting article in a special edition on pregnancy of The Lancet [...]