News

The new EURORDIS Rare Barometer survey on the impact of rare diseases on everyday life is now live! By asking questions on your participation in daily activities, such as school, leisure, and [...]

EJP RD is still gathering responses for its survey on the impact of Rare Diseases research resources and tools provided by the Network. As a valued member of the Rare Diseases research community, [...]

Exciting News! The new European Joint Programme of Rare Diseases (EJP RD) course “Innovative Therapies and Personalized Medicine for Rare Diseases” is officially live. Explore [...]

For the second consecutive year, ERN ReCONNET is happy to join the World Scleroderma Day on June 29th. Follow us on our social media (LinkedIn X YouTube Instagram @Threads Facebook) to celebrate [...]

Recently, our ERN ReCONNET ePAG representative for Systemic Lupus Erythematous (SLE), Jeanette Andersen, has co-authored an important article on children born to mothers with autoimmune rheumatic [...]

On Wednesday 10 July at 2.30 pm CEST, Rare Barometer, the global survey initiative of EURORDIS – Rare Diseases Europe, will launch a new survey on the impact of rare diseases on everyday life. [...]

Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, [...]

Recently, our ERN ReCONNET ePAG representative for Antiphospholipid Syndrome (APS), Dr. Silvia Aguilera, has published a very interesting article in a special edition on pregnancy of The Lancet [...]

ERN ReCONNET è felice di poter condividere con tutti voi, la sua partecipazione all’evento organizzato per oggi dal Ministero della Salute a Roma, focalizzato sul progetto Jardin (JA) [...]

The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and it will be hosted by MetabERN. The aim of the ERICA [...]