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      • Cornet Alain
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      • Luciu Ramona
      • Matthews Lisa
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ERN ReCONNET ERN ReCONNET
  • Home
  • Disease_SSc
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
      • ERN ReCONNET Survey: Everything you always wanted to know about EDS and HSD
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s syndrome
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  •   Login CPMS
  • About Us
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    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Luciu Ramona
      • Matthews Lisa
      • Schlüter Silke
      • Vieira Ana
    • Patients’ Organisations
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      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
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      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
    • Webinars
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      • Expert Panel on CPGs
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Archives

Monthly Archive for: "February, 2024"
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 Rare Disease Day: discover how the EU is tackling rare diseases through the ERNs
0
By reconnet
In News
Posted February 29, 2024

Rare Disease Day: discover how the EU is tackling rare diseases through the ERNs

Today we celebrate Rare Diseases Day. In the EU, up to 36 million people live with a rare disease, with around 80% of rare diseases having a genetic origin. Among them, 70% begin to manifest as [...]

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 ERN ReCONNET joins the light up initiative for the rare disease day (RDD 2024)
0
By reconnet
In News
Posted February 29, 2024

ERN ReCONNET joins the light up initiative for the rare disease day (RDD 2024)

ERN ReCONNET joins the Light Up initiative for the Rare Disease Day 2024 by coloring Pisa and San Giovanni Rotondo (Foggia) Starting 2008, the Rare Disease Day is celebrated all over the world [...]

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 ERN RECONNET – NEWSLETTER N. 23: Webinar calendar!
0
By reconnet
In Newsletter
Posted February 20, 2024

ERN RECONNET – NEWSLETTER N. 23: Webinar calendar!

The ERN ReCONNET 2024 webinar calendar is now available! Since October 2023, the organisation of the ERN ReCONNET webinars is managed by the Team of the IRCCS AOU San Martino in Genoa (Italy) and [...]

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 ERN ReCONNET SLE Survey
0
By reconnet
In News
Posted February 19, 2024

ERN ReCONNET SLE Survey

The deadline for the ERN ReCONNET RarERN Path Systemic Lupus Erythematous (SLE) survey is Feb. 29th, so there is still time to tell us YOUR story, moreover now the languages are 14 with with [...]

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 Rare Diseases in the EU: Joint Action shaping the future of ERNs JARDIN kick-off meeting
0
By reconnet
In News
Posted February 9, 2024

Rare Diseases in the EU: Joint Action shaping the future of ERNs JARDIN kick-off meeting

ERN ReCONNET is honored to join the major conference on Rare Diseases in the EU: Joint Action shaping the future of ERNs organized by the European Economic and Social Committee (EESC) with [...]

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 8th World Scleroderma Congress
0
By reconnet
In News
Posted February 9, 2024

8th World Scleroderma Congress

ERN ReCONNET is glad to share with you the upcoming 8th World Scleroderma Congress that will be held on March 14- 16, 2024 in Prague (Czech Republic). The first 5 congresses in Florence 2010, [...]

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 EJP RD Final Conference
0
By reconnet
In News
Posted February 7, 2024

EJP RD Final Conference

The EJP RD Final Conference is scheduled to take place from May 27th to May 28th, 2024 in Bari, Italy, this conference is set to bring together leading experts, professionals, and enthusiasts [...]

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 Patient World Congress- World Scleroderma Congress 2024
0
By reconnet
In News
Posted February 5, 2024

Patient World Congress- World Scleroderma Congress 2024

The Federation of European Scleroderma Associations (FESCA) is pleased to announce that the Patient World Congress which will take place on the 15-16 March, 2024 in Prague, Czech Republic. The [...]

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 New ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024!
0
By reconnet
In Dissemination materials
Posted February 1, 2024

New ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024!

    ERN ReCONNET launched its initiatives for the Rare Disease Awareness Month with this video!

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 Let’s start the awareness month of Rare Diseases 2024!
0
By reconnet
In News
Posted February 1, 2024

Let’s start the awareness month of Rare Diseases 2024!

February has started and ERN ReCONNET is very excited to be part of the global movement aimed at raising awareness of Rare Diseases! A few numbers and facts to recall the current status quo of [...]

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ERN ReCONNET is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are funded by the European Union. The content of this publication represents the views of the authors only and it is their sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Health and Digital Executive Agency (HaDEA) or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

menu
  • Home
  • Disease_SSc
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
      • ERN ReCONNET Survey: Everything you always wanted to know about EDS and HSD
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s syndrome
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  •   Login CPMS
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    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Luciu Ramona
      • Matthews Lisa
      • Schlüter Silke
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SS
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      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
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    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
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