Dissemination materials

Just a few days ahead of the 2025 Rare Disease Day and the European Commission has recently published a series of documents on Rare Diseases, including a new Booklet “European Reference [...]

Here is a collection of the dedicate ERN ReCONNET dissemination slides developed and shared on our social media channels (LinkedIn, X, YouTube, Instagram, @Threads, and Facebook) during the [...]

In the US, during 1950s-1960s Dr. Robert Guthrie developed a paper blood spot card test as a new assay to screen newborns for phenylketonuria, PKU: The Newborn Screening (NBS) test was born. His [...]

The ERN ReCONNET Education and Training Working Group (WG) is glad to release its new flyer on nailfold videocapillaroscopy (NVC), a new and informative document targeting patients and lay [...]

There are a number of challenges surrounding the development of Clinical Practice Guidelines (CPGs) and Clinical Decision Support Tools (CDSTs) for rare diseases. One of the most relevant [...]

The 2022 Report on the Member State data on cross-border patient healthcare following Directive 2011/24/EU is available for consultation. 2022 Report Cross-border patient healthcare data   [...]

ERN ReCONNET joins this international campaign to shed a light on this important matter as 350 million people around the world live with an undiagnosed disease. Research on our human genome [...]

ERN ReCONNET recognizes the value of women in our society and in our Network. Thank you all for what you do! 

    ERN ReCONNET launched its initiatives for the Rare Disease Awareness Month with this video!

The European Commission has developed this relevant factsheet aimed at presenting the ERN ReCONNET and explaining the Network actions, initiatives, activities as well as its mission and goals. [...]