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Discover ERN ReCONNET’s latest special newsletter issue dedicated to Rare Disease Day, bringing together highlights and resources that support awareness and collaboration across the rare disease [...]

ERN ReCONNET marked Rare Disease Day with a powerful and symbolic initiative by illuminating the iconic Leaning Tower of Pisa, transforming one of Europe’s most recognisable monuments into a [...]

  ERN ReCONNET actively contributed to the Transition in Rare Diseases Workshop, held on 27–28 February 2026 in Ghent, Belgium. ERN ReCONNET was represented by Edoardo Marrani, Chiara [...]

On the occasion of Rare Disease Day, DG SANTE has prepared a comprehensive communication package to support awareness and engagement around rare diseases and the ERNs.   🗓 The materials are [...]

During Rare Disease Month, ERN ReCONNET is pleased  to highlight three powerful patient stories collected within the framework of the JARDIN Joint Action. These testimonies give voice to people [...]

  To mark the start of the new season, Prof. Maurizio Cutolo introduces the 2026 programme in a short video message, highlighting the educational vision behind the webinars and the [...]

Supporting Patient Partners (SPPs)   Working together with patients and patient organisations ERN ReCONNET works closely with patients, families, and patient organisations to improve care for [...]

ERN ReCONNET is pleased to announce the first series of scientific and educational events endorsed for 2026. These meetings reflect our continued commitment to fostering collaboration, advancing [...]

The registration for the European Conference on Rare Diseases & Orphan Drugs (ECRD 2026) is officially open! 🗓️ 🌍 ECRD is a leading event dedicated to the rare disease community, bringing [...]

We are happy to share the latest ERN ReCONNET newsletter (December 2025 edition) with our community! This issue looks back at a very active year for the network and brings together updates, [...]