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Following 3-day ‘marathon’ talks, the Council presidency and the European Parliament’s negotiators have reached a provisional agreement on the proposal on harmonised rules on artificial [...]

On December 14th, 2023, the FDA in collaboration with the Duke-Robert J. Margolis, MD Center for Health Policy (Duke-Margolis) will host a virtual public meeting titled “Advancing the Development [...]

The updated informative brochures on the European Reference Networks has been recently developed by the European Commission. The brochure was translated in 26 European languages: Bulgarian, [...]

Here are  the ERN ReCONNET posters presented at the conferences and meetings the Coordination Team has joined in 2023. November 2023. Poster presented at the ACR 2023 in San Diego (USA) and at [...]

ERN ReCONNET is glad to share this interesting position paper focused to analyze several aspects associated with rare diseases system such as research and innovation, drug discovery and [...]

Over the last four years, health systems and society have been pushed to extremes in responding to the COVID-19 crisis. In addition, many of the most important global trends today, including [...]

This year, ERN ReCONNET is glad to join the annual International Day of Disabled Persons that was proclaimed in 1992 by the United Nations General Assembly resolution 47/3. The observance of the [...]

The European Commission has proposed revisions to the Pharmaceutical Legislation, with the view to tackle unmet medical needs, competitiveness, access and affordability. This update represents a [...]

This #EUHPP Live Webinar will be launched on 15 December at 11.00 at a virtual event organised by the European Commission. The event will be opened by Sandra Gallina (Director-General, [...]

The following Massive Open Online Courses (MOOC) “Diagnosing rare diseases: from the clinic to research and back”  and “Introduction to Translational Research for Rare Diseases” are available for [...]