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On September 29-30, we had the honour of hosting in Pisa the European Commission DG SANTE delegation, composed of Donata Meroni and Stefano Vettorazzi, for an in-depth visit focused on ERN [...]

From 9 to 11 December 2025, ERN ReCONNET took part in the High-Level Meeting on Rare Diseases, a three-day event dedicated to strengthening Europe’s capacity for research and innovation in rare [...]

ERN ReCONNET has just launched a new survey focused on the assessment and self-management of digital lesions (including digital ulcers) in people living with systemic sclerosis (SSc). Digital [...]

📣 Registration Open for the 3rd ERN ReCONNET Sharing Good Practice Initiative    The ERN ReCONNET Working Group on Research and Quality of Care is pleased to announce the third edition of [...]

ERN ReCONNET is pleased to announce the results of the recent elections for the network’s Disease Coordinators for the upcoming mandate. This election cycle recorded an exceptionally high level [...]

Ljubljana, Slovenia – 13–14 November 2025 ERN ReCONNET successfully hosted a two-day Transition Training Workshop in Ljubljana dedicated to developing a shared European curriculum for improving [...]

  Your Experience Can Help Improve Care Across Europe: participate now in the ERN ReCONNET Transition Survey   ERN ReCONNET has launched a European-wide survey to better understand the [...]

📢 The new ERN ReCONNET Newsletter n. 29 – JULY EDITION – is out! Dive into the latest updates, exciting developments, and upcoming initiatives from the ERN ReCONNET community. Here’s what you’ll [...]

📢 The new ERN ReCONNET Newsletter n. 29 – JULY EDITION – is out! Dive into the latest updates, exciting developments, and upcoming initiatives from the ERN ReCONNET community. Here’s what you’ll [...]