Register to the ERN ReCONNET live webinar for healthcare professionals “Skin manifestations in EDS: what are they and how to manage them” by professors Fransiska Malfait (Ghent University) and [...]
Diana Marinello is the network manager of ERN ReCONNET since june 2017. She is in charge of strategic and operational management of activities and stakeholders; supervision of the policies and [...]
Here you could find some useful informations and downloadable materials about pregnancy, Clinical Practice Guidelines, etc. developed by ERN ReCONNET ePAGs. You can print it out, download it, [...]
Save the date! Register to the ERN ReCONNET live webinar for patients “Clinical practice guidelines: what do you need to know” by Ilaria Galetti (European Patient Advocacy Group representative) [...]
The Ehlers-Danlos syndromes comprise a clinically and genetically heterogeneous group of heritable connective tissue disorders, which are characterized by joint hypermobility, skin [...]
Save the date! Register to the ERN ReCONNET live webinar for healthcare professionals “Sex hormones and COVID-19: how is the game?” by professor Maurizio Cutolo (University of Genoa). 1st June [...]
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