Dissemination materials

Here is a list of relevant documents in support of rare/complex patients developed by EURORDIS and the European Commission: Thinking to apply as an ePAG advocate: Short guide (EURORDIS) Patient [...]

Here is a collection of important dissemination materials developed by the European Commission on the Clinical Patient Management System (CPMS).  More info and details about this important system [...]

ERN ReCONNET has translated the CPMS description in 24 different languages, here is the list: ERN ReCONNET. CPMS – Bulgarian ERN ReCONNET. CPMS – Croatian ERN ReCONNET. CPMS – [...]

ERN ReCONNET Exchange Program aims at enhanceìing knowledge sharing and stimulating collaboration between health care professionals in ERNs and strengthen capacities and organisation of the ERNs. [...]

The updated informative brochures on the European Reference Networks has been recently developed by the European Commission. The brochure was translated in 26 European languages: Bulgarian, [...]

Here are  the ERN ReCONNET posters presented at the conferences and meetings the Coordination Team has joined in 2023. November 2023. Poster presented at the ACR 2023 in San Diego (USA) and at [...]

In the European Union (EU) alone, up to 36 million people are living with one of the over 6,000 distinct rare diseases. Each rare disease, however, has a low prevalence. The definition of a rare [...]

The informative brochures on CPMS National Hubs have been translated by the National Hubs responsibles in the main european languages (deutsch, french, italian, dutch, portuguese, romanian). [...]

The European League Against Rheumatism (EULAR) developed a Guidance for people with Rheumatic Musculoskeletal Diseases (RMDs) about COVID-19 outbreak. Click on the image to download the ERN [...]

Patients’ involvement How to get involved CPMS This leaflet describes the role of patients in the ERN ReCONNET, their activities inside the ERN, how to become an ePAG representative or an [...]