News from ERN ReCONNET

The ERN ReCONNET Exchange Programme 2026–2027 is now open for applications!   The programme offers ERN ReCONNET Healthcare Professionals and ePAG Advocates the opportunity to visit an ERN [...]

Don’t miss the opportunity to join the ERN ReCONNET Transition of Care Accredited Training on rare and complex connective tissue diseases, an intensive international accredited programme [...]

The ERN ReCONNET’s accredited Transition of Care Course will be presented during the EURORDIS Patient Partnership Webinar Series “Transition in Healthcare – Turning Recommendations [...]

ERN ReCONNET Presents Transition of Care Framework at EULAR 2026 ERN ReCONNET is proud to announce that Dr. Mojca Zajc Avramovič (Ljubljana, Slovenia) delivered an oral presentation during the [...]

After four inspiring days at EULAR 2026 in London, ERN ReCONNET looks back on a highly successful congress filled with valuable exchanges, new connections, and opportunities for collaboration. [...]

The new ERN ReCONNET Strategic Board  We are pleased to announce the composition of the new ERN ReCONNET Strategic Board. We extend our warmest congratulations to the new members of the Board for [...]

The purpose of this public consultation is to provide a basis for the forthcoming work of the Committee on Public Health (SANT) in bringing a better understanding and detailed knowledge of the [...]

ERN ReCONNET celebrates the Rare Disease Day lighting the Leaning Tower of Pisa. ERNs stand close to all those living with a rare disease. Rare is many. Rare is strong. Rare is proud.  

Welcome to Ramona Luciu, the new ERN ReCONNET ePAG Advocate representing UCTD! Ramona Luciu is from from Romania, she has been diagnosed with UCTD in 2021 and she represents the UCTD patient [...]

Just a few days ahead of the 2025 Rare Disease Day and the European Commission has recently published a series of documents on Rare Diseases, including a new Booklet “European Reference [...]