News from ERN ReCONNET

The new ERN ReCONNET Strategic Board  We are pleased to announce the composition of the new ERN ReCONNET Strategic Board. We extend our warmest congratulations to the new members of the Board for [...]

The purpose of this public consultation is to provide a basis for the forthcoming work of the Committee on Public Health (SANT) in bringing a better understanding and detailed knowledge of the [...]

ERN ReCONNET celebrates the Rare Disease Day lighting the Leaning Tower of Pisa. ERNs stand close to all those living with a rare disease. Rare is many. Rare is strong. Rare is proud.  

Welcome to Ramona Luciu, the new ERN ReCONNET ePAG Advocate representing UCTD! Ramona Luciu is from from Romania, she has been diagnosed with UCTD in 2021 and she represents the UCTD patient [...]

Just a few days ahead of the 2025 Rare Disease Day and the European Commission has recently published a series of documents on Rare Diseases, including a new Booklet “European Reference [...]

ERN ReCONNET is glad to take part in the ERICA and EJP RD joint Conference that will take place in Amsterdam on November 21st. This is going to be a unique opportunity to explore the European and [...]

ERN ReCONNET sarà presente al 60° Congresso della Società Italiana di Reumatologia (SIR) che si svolgerà, come è ormai tradizione da diversi anni, presso il Palacongressi di Rimini, avremo il [...]

This webinar focuses on dermatomyositis (DM), an auto-immune disease, characterized by distinct skin lesions and a heterogeneous constellation of systemic manifestations, including myositis and [...]

ERN ReCONNET is happy to join the World Scleroderma Day in collaboration with FESCA. As ERN ReCONNET we are proud to have developed a dedicated Systemic Sclerosis (SSc) webpage where relevant and [...]

We are very happy to announce that the ERN ReCONNET Young Working Group is launching a call for applications to receive bursaries to attend the EULAR 2023 congress. There are 3 bursaries of 700€ [...]