News

The deadline for the ERN ReCONNET RarERN Path Systemic Lupus Erythematous (SLE) survey is Feb. 29th, so there is still time to tell us YOUR story, moreover now the languages are 14 with with [...]

ERN ReCONNET is honored to join the major conference on Rare Diseases in the EU: Joint Action shaping the future of ERNs organized by the European Economic and Social Committee (EESC) with [...]

ERN ReCONNET is glad to share with you the upcoming 8th World Scleroderma Congress that will be held on March 14- 16, 2024 in Prague (Czech Republic). The first 5 congresses in Florence 2010, [...]

The EJP RD Final Conference is scheduled to take place from May 27th to May 28th, 2024 in Bari, Italy, this conference is set to bring together leading experts, professionals, and enthusiasts [...]

The Federation of European Scleroderma Associations (FESCA) is pleased to announce that the Patient World Congress which will take place on the 15-16 March, 2024 in Prague, Czech Republic. The [...]

February has started and ERN ReCONNET is very excited to be part of the global movement aimed at raising awareness of Rare Diseases! A few numbers and facts to recall the current status quo of [...]

Since last year, ERN ReCONNET decided to join some international awareness days to raise awareness of relevant matters related to the healthcare ecosystem. As Network, we believe it is important [...]

The main theme of the 17th EPH Conference Lisbon 2024 is: Sailing the waves of European public health: exploring a sea of innovation This year’s conference theme encapsulates the EPH collective [...]

The EMA’s Orphan Medicines Office is hosting an interactive webinar Rare Disease Day on 29 February 2024, to answer questions that developers of products for rare diseases or researchers in this [...]

An interesting IRDiRC paper on a hot topic: Drug Repurposing. The article can be downloaded here 2024 – Jonker et al. Drug repurposing for rare progress and opportunities for the rare [...]