ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases
  • Home
  • Disease_SSc
  • Diseases
    • Back
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
      • Back
      • ERN ReCONNET Survey: Everything you always wanted to know about EDS and HSD
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s syndrome
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • Back
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  •   Login CPMS
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
  • Disease_IIMs
  • Subscribe to our Newsletter
  • Contact Us
  • Disease_APS
  • Disease_UCTD
  • Disease_IgG4
  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • Back
    • ERN ReCONNET ePAGs ADVOCATES
      • Back
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Luciu Ramona
      • Matthews Lisa
      • Schlüter Silke
      • Vieira Ana
    • Patients’ Organisations
      • Back
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SS
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • Back
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Back
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
    • Webinars
    • Publications
    • Documents
    • RarERN Path
    • CPGS & Clinical Tools
      • Back
      • Expert Panel on CPGs
      • SSc lay version
    • Exchange Programme
    • Registry
    • CPMS
      • Back
      • CPMS National Hubs
      • National Hubs Brochures
      • Guides to CPMS
    • Monitoring
  • Network
    • Back
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • Back
      • WG Education and Training
      • WG Patients’ Partnership
      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
      • TF Pregnancy
    • ERN ReCONNET Coordination Team
    • External collaborating Experts
    • JARDIN Joint Action
  • News
    • Back
    • News
    • Dissemination materials
    • ERN ReCONNET Videos
    • ERN ReCONNET @ Meetings
    • ERN ReCONNET across press media
    • Newsletter
    • Useful links
  • COVID-19
    • Back
    • ERN-ReCONNET
    • European Commission
    • EURORDIS
    • EULAR
    • ACR
    • Rheumatology Societies
    • EMA
    • ECDC
    • WHO
  • Contact
  • Home
  • Disease_SSc
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
      • ERN ReCONNET Survey: Everything you always wanted to know about EDS and HSD
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s syndrome
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  •   Login CPMS
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
  • Disease_IIMs
  • Subscribe to our Newsletter
  • Contact Us
  • Disease_APS
  • Disease_UCTD
  • Disease_IgG4
  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Luciu Ramona
      • Matthews Lisa
      • Schlüter Silke
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SS
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
    • Webinars
    • Publications
    • Documents
    • RarERN Path
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Exchange Programme
    • Registry
    • CPMS
      • CPMS National Hubs
      • National Hubs Brochures
      • Guides to CPMS
    • Monitoring
  • Network
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • WG Education and Training
      • WG Patients’ Partnership
      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
      • TF Pregnancy
    • ERN ReCONNET Coordination Team
    • External collaborating Experts
    • JARDIN Joint Action
  • News
    • News
    • Dissemination materials
    • ERN ReCONNET Videos
    • ERN ReCONNET @ Meetings
    • ERN ReCONNET across press media
    • Newsletter
    • Useful links
  • COVID-19
    • ERN-ReCONNET
    • European Commission
    • EURORDIS
    • EULAR
    • ACR
    • Rheumatology Societies
    • EMA
    • ECDC
    • WHO
  • Contact
ERN ReCONNET ERN ReCONNET
  • Home
  • Disease_SSc
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
      • ERN ReCONNET Survey: Everything you always wanted to know about EDS and HSD
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s syndrome
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  •   Login CPMS
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
  • Disease_IIMs
  • Subscribe to our Newsletter
  • Contact Us
  • Disease_APS
  • Disease_UCTD
  • Disease_IgG4
  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Luciu Ramona
      • Matthews Lisa
      • Schlüter Silke
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SS
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
    • Webinars
    • Publications
    • Documents
    • RarERN Path
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Exchange Programme
    • Registry
    • CPMS
      • CPMS National Hubs
      • National Hubs Brochures
      • Guides to CPMS
    • Monitoring
  • Network
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • WG Education and Training
      • WG Patients’ Partnership
      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
      • TF Pregnancy
    • ERN ReCONNET Coordination Team
    • External collaborating Experts
    • JARDIN Joint Action
  • News
    • News
    • Dissemination materials
    • ERN ReCONNET Videos
    • ERN ReCONNET @ Meetings
    • ERN ReCONNET across press media
    • Newsletter
    • Useful links
  • COVID-19
    • ERN-ReCONNET
    • European Commission
    • EURORDIS
    • EULAR
    • ACR
    • Rheumatology Societies
    • EMA
    • ECDC
    • WHO
  • Contact

Archives

Monthly Archive for: "November, 2023"
Home /
 #EUHPP LIVE WEBINAR State of Health in the EU 2023 Country Profiles & Synthesis Report
0
By reconnet
In News
Posted November 30, 2023

#EUHPP LIVE WEBINAR State of Health in the EU 2023 Country Profiles & Synthesis Report

This #EUHPP Live Webinar will be launched on 15 December at 11.00 at a virtual event organised by the European Commission. The event will be opened by Sandra Gallina (Director-General, [...]

READ MORE
 EJP RD: Online Academic Education Course
0
By reconnet
In News
Posted November 27, 2023

EJP RD: Online Academic Education Course

The following Massive Open Online Courses (MOOC) “Diagnosing rare diseases: from the clinic to research and back”  and “Introduction to Translational Research for Rare Diseases” are available for [...]

READ MORE
 LUPHPOS – Lupus Physician’ Perspective On GlucocorticoidS- Survey
0
By reconnet
In News
Posted November 19, 2023

LUPHPOS – Lupus Physician’ Perspective On GlucocorticoidS- Survey

ERN ReCONNET is happy to extedn this important survey to all its members and friends. You are invited to participate in the LUPHPOS survey (Lupus Physician’s Perspective on [...]

READ MORE
 ERN ReCONNET at the ERICA & EJP RD Joint Conference
0
By reconnet
In News from ERN ReCONNET
Posted November 19, 2023

ERN ReCONNET at the ERICA & EJP RD Joint Conference

ERN ReCONNET is glad to take part in the ERICA and EJP RD joint Conference that will take place in Amsterdam on November 21st. This is going to be a unique opportunity to explore the European and [...]

READ MORE
 60° CONGRESSO NAZIONALE SIR (SOCIETA’ ITALIANA DI REUMATOLOGIA) 2023
0
By reconnet
In News from ERN ReCONNET
Posted November 17, 2023

60° CONGRESSO NAZIONALE SIR (SOCIETA’ ITALIANA DI REUMATOLOGIA) 2023

ERN ReCONNET sarà presente al 60° Congresso della Società Italiana di Reumatologia (SIR) che si svolgerà, come è ormai tradizione da diversi anni, presso il Palacongressi di Rimini, avremo il [...]

READ MORE
 ERN ReCONNET – Newsletter n. 21
0
By reconnet
In Newsletter
Posted November 7, 2023

ERN ReCONNET – Newsletter n. 21

The new ERN ReCONNET Flash News is out! Check it out and connect with us to get the latest updates on ACR 2023, we will be live from San Diego!

READ MORE
 Summary report of the TRANSFORM 2023 Conference
0
By reconnet
In News
Posted November 7, 2023

Summary report of the TRANSFORM 2023 Conference

How can policymakers secure the promise of advanced therapies for patients over the next 6 months? Read the summary report of the TRANSFORM 2023 Conference to learn what our multi-stakeholder [...]

READ MORE
 One Health Conference – One Health for All, All for One Health
0
By reconnet
In News
Posted November 7, 2023

One Health Conference – One Health for All, All for One Health

The recent epidemics and pandemics, in particular COVID-19, have made it unmistakably clear that human, animal, plant and environmental health cannot be dealt with separately, but need to be [...]

READ MORE
 Beacon for Rare Diseases: The London Rare Disease Showcase 2023
0
By reconnet
In News
Posted November 6, 2023

Beacon for Rare Diseases: The London Rare Disease Showcase 2023

Join Beacon for Rare, live and in-person for The London Rare Disease Showcase that aims to shed light on the latest innovations and advancements occurring in the field of rare diseases, with [...]

READ MORE
 B1MG project draws to a close
0
By reconnet
In News
Posted November 2, 2023

B1MG project draws to a close

The Beyond 1 Million Genomes project (B1MG) has been a €4M three-year Coordination and Support Action to support the design and testing phase of the European 1+Million Genomes (1+MG) initiative. [...]

READ MORE
ERN ReCONNET
banner with ERN logo for the footer

ERN ReCONNET is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are funded by the European Union. The content of this publication represents the views of the authors only and it is their sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Health and Digital Executive Agency (HaDEA) or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

menu
  • Home
  • Disease_SSc
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
      • ERN ReCONNET Survey: Everything you always wanted to know about EDS and HSD
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s syndrome
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  •   Login CPMS
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
  • Disease_IIMs
  • Subscribe to our Newsletter
  • Contact Us
  • Disease_APS
  • Disease_UCTD
  • Disease_IgG4
  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Luciu Ramona
      • Matthews Lisa
      • Schlüter Silke
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SS
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
    • Webinars
    • Publications
    • Documents
    • RarERN Path
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Exchange Programme
    • Registry
    • CPMS
      • CPMS National Hubs
      • National Hubs Brochures
      • Guides to CPMS
    • Monitoring
  • Network
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • WG Education and Training
      • WG Patients’ Partnership
      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
      • TF Pregnancy
    • ERN ReCONNET Coordination Team
    • External collaborating Experts
    • JARDIN Joint Action
  • News
    • News
    • Dissemination materials
    • ERN ReCONNET Videos
    • ERN ReCONNET @ Meetings
    • ERN ReCONNET across press media
    • Newsletter
    • Useful links
  • COVID-19
    • ERN-ReCONNET
    • European Commission
    • EURORDIS
    • EULAR
    • ACR
    • Rheumatology Societies
    • EMA
    • ECDC
    • WHO
  • Contact
Contact Details
  • ERN ReCONNET
  • Via Roma, 67 – 56126 Pisa
  • ern.reconnet@ao-pisa.toscana.it
Social Network
Site navigation
Sitemap
Copyright © 2018 ERN ReCONNET
Subscribe to our Newsletter

We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it.OkNo
If you give your consent, cookies will be stored for a one-month period of time. You can revoke your consent any time using the Revoke consent button.Revoke cookies