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ERN ReCONNET would like to congratulate to our ePAG Ilaria Galetti for the European Pulmonary Fibrosis Federation (EU-PFF) Patient Advocacy Champion Award 2024. Ilaria was honored with this [...]

The webinar is organized by c4c and it will be held on May 3rd, 2024 from 1 pm to 2 pm CEST. Speakers will be Mark Turner (c4c), Fenna Mahler (c4c),  Pamela Dicks (NHS Scotland Children’s [...]

ERN ReCONNET joins this international campaign to shed a light on this important matter as 350 million people around the world live with an undiagnosed disease. Research on our human genome [...]

Targeted Consultation on EU4Health: have your say on future priorities, orientations and needs Help shape the direction of the #EU4Health funding programme for 2025! As we reach the mid-point of [...]

The European Health Data Space (EHDS) will be a key pillar of the strong European Health Union. and is the first common EU data space in a specific area to emerge from the European strategy for [...]

Share4Rare will host a webinar (in English) Thursday, May 9th at 4:00 pm on the 2024 research project call. Share4Rare aims to enhance research on rare diseases through collaborative knowledge [...]

ERN ReCONNET is proud to announce to be an ECRD 2024 Associated Partner! The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. The event is coming up soon, [...]

This webinar is organized by ERICA in collaboration with conect4children,  EJP RD, and ERN BOND and it is scheduled for April 11th at 13:00 CEST. The webinar will be introduced by Prof. Mark [...]

Share4Rare is a project aimed at making a difference in rare diseases, where the entire community gathered by patients, carers, clinicians, and researchers, join forces. Share4Rare is funded by a [...]