News

The Country Health Profiles are accompanied by a Synthesis Report presented by the European Commission, which highlights a selection of horizontal observations based on the analysis of the [...]

Interesting scientific article on a prioritization methodology aimed at solving the undiagnosed rare diseases. Here is the abstract for more detailed information and the pdf can be downloaded at [...]

Join the first international drug repurposing conference “Bridging Boundaries: Innovating, Connecting & Reshaping Drug Repurposing”, #iDR24, co-organised by REMEDi4ALL, Beacon, and MeRIT on [...]

Congratulations to Prof. Chiara Baldini from AOUP for being elected as our new Disease Coordinator for Sjogren’s Syndrome! Prof. Baldini has been working in Sjögren’s syndrome (SS) research since [...]

ERN ReCONNET is proud and happy to annouce that our ePAG Advocate, Silvia Aguilera, has been awarded of the EURORDIS 2024 Volunteer Award. Congratulations from the entire Network! At ERN [...]

Universal Health Coverage Day on December 12th is the annual rallying point for the growing movement for health for all. It marks the anniversary of the United Nations’ historic and unanimous [...]

Following 3-day ‘marathon’ talks, the Council presidency and the European Parliament’s negotiators have reached a provisional agreement on the proposal on harmonised rules on artificial [...]

On December 14th, 2023, the FDA in collaboration with the Duke-Robert J. Margolis, MD Center for Health Policy (Duke-Margolis) will host a virtual public meeting titled “Advancing the Development [...]

ERN ReCONNET is glad to share this interesting position paper focused to analyze several aspects associated with rare diseases system such as research and innovation, drug discovery and [...]

Over the last four years, health systems and society have been pushed to extremes in responding to the COVID-19 crisis. In addition, many of the most important global trends today, including [...]