News

The Belgian presidency programme sets out the priorities and main directions of the Belgian presidency of the Council of the EU. The Belgian term takes place from the 1st of January to the 30th [...]

This important workplan will help the European medicines regulatory network (EMRN) to embrace the opportunities of AI for personal productivity, automating processes and systems, increasing [...]

This joint two-day hybrid HMA/EMA workshop on Patient Registries on Feb. 12-13, 2024, at the European Medicines Agency, Amsterdam, the Netherlands. The workshop follows on the successful [...]

Recently, EMA published details of the newly created solidarity mechanism developed by the EMA Medicines Shortages Steering Group (MSSG). This voluntary mechanism allows Member States to support [...]

Federation of European Scleroderma Associations (FESCA) held an event in the EU Parliament to present the findings of the patient survey, which highlighted the challenges faced by the Scleroderma [...]

The Country Health Profiles are accompanied by a Synthesis Report presented by the European Commission, which highlights a selection of horizontal observations based on the analysis of the [...]

Interesting scientific article on a prioritization methodology aimed at solving the undiagnosed rare diseases. Here is the abstract for more detailed information and the pdf can be downloaded at [...]

Join the first international drug repurposing conference “Bridging Boundaries: Innovating, Connecting & Reshaping Drug Repurposing”, #iDR24, co-organised by REMEDi4ALL, Beacon, and MeRIT on [...]

Congratulations to Prof. Chiara Baldini from AOUP for being elected as our new Disease Coordinator for Sjogren’s Syndrome! Prof. Baldini has been working in Sjögren’s syndrome (SS) research since [...]

ERN ReCONNET is proud and happy to annouce that our ePAG Advocate, Silvia Aguilera, has been awarded of the EURORDIS 2024 Volunteer Award. Congratulations from the entire Network! At ERN [...]