News

ERN ReCONNET is proud and happy to annouce that our ePAG Advocate, Silvia Aguilera, has been awarded of the EURORDIS 2024 Volunteer Award. Congratulations from the entire Network! At ERN [...]

Universal Health Coverage Day on December 12th is the annual rallying point for the growing movement for health for all. It marks the anniversary of the United Nations’ historic and unanimous [...]

Following 3-day ‘marathon’ talks, the Council presidency and the European Parliament’s negotiators have reached a provisional agreement on the proposal on harmonised rules on artificial [...]

On December 14th, 2023, the FDA in collaboration with the Duke-Robert J. Margolis, MD Center for Health Policy (Duke-Margolis) will host a virtual public meeting titled “Advancing the Development [...]

ERN ReCONNET is glad to share this interesting position paper focused to analyze several aspects associated with rare diseases system such as research and innovation, drug discovery and [...]

Over the last four years, health systems and society have been pushed to extremes in responding to the COVID-19 crisis. In addition, many of the most important global trends today, including [...]

This year, ERN ReCONNET is glad to join the annual International Day of Disabled Persons that was proclaimed in 1992 by the United Nations General Assembly resolution 47/3. The observance of the [...]

The European Commission has proposed revisions to the Pharmaceutical Legislation, with the view to tackle unmet medical needs, competitiveness, access and affordability. This update represents a [...]

This #EUHPP Live Webinar will be launched on 15 December at 11.00 at a virtual event organised by the European Commission. The event will be opened by Sandra Gallina (Director-General, [...]

The following Massive Open Online Courses (MOOC) “Diagnosing rare diseases: from the clinic to research and back”  and “Introduction to Translational Research for Rare Diseases” are available for [...]