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    • Relapsing Polychondritis
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News

Home / News / (Page 13)
 B1MG project draws to a close
0
By reconnet
In News
Posted November 2, 2023

B1MG project draws to a close

The Beyond 1 Million Genomes project (B1MG) has been a €4M three-year Coordination and Support Action to support the design and testing phase of the European 1+Million Genomes (1+MG) initiative. [...]

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 XpanDH Webinar: The Risks for Europe Without a European Health Data Space
0
By reconnet
In News
Posted October 31, 2023

XpanDH Webinar: The Risks for Europe Without a European Health Data Space

XpanDH will host its fourth webinar titled ‘Unlocking the Potential: The European Health Data Space and the Digital Future of European Healthcare‘ on Thursday 16 November 2023, 14:00 ​- 15:00 [...]

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 ERNs: A flagship EU action for patients with rare diseases
0
By reconnet
In Dissemination materials, News
Posted October 30, 2023

ERNs: A flagship EU action for patients with rare diseases

In the European Union (EU) alone, up to 36 million people are living with one of the over 6,000 distinct rare diseases. Each rare disease, however, has a low prevalence. The definition of a rare [...]

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 Free online course. “MOOC From Lab to Clinic: Translational Research for Rare Diseases”
0
By reconnet
In News
Posted October 30, 2023

Free online course. “MOOC From Lab to Clinic: Translational Research for Rare Diseases”

The French Foundation for Rare Diseases has announced the opening of a new facilitation window of the MOOC From Lab to Clinic: Translational Research for Rare Diseases on October 9th. This update [...]

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 ORPHANET latest resources
0
By reconnet
In News
Posted October 26, 2023

ORPHANET latest resources

Orphanet has developed and produced several important resources for the rare disease ecosystem. Here is a list of the latest news: ORPHAcodes. Rare disease-specific coding systems are key for [...]

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 IRDiRC Drug Repurposing Guidebook
0
By reconnet
In News
Posted October 25, 2023

IRDiRC Drug Repurposing Guidebook

The International Rare Diseases Research Consortium (IRDiRC) has developed a new guidebook to invigorate drug repurposing for rare diseases. Drug repurposing has often been suggested as a [...]

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 ERICA Webinar:“Bridging the gap between promising preclinical data and a successful clinical trial”
0
By reconnet
In News
Posted October 18, 2023

ERICA Webinar:“Bridging the gap between promising preclinical data and a successful clinical trial”

This interesting ERICA webinar is focused on the importance of translational research referred to “bench-to-bedside” by showcasing two successful models for bridging the gap between preclinical [...]

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 VASCERN Summer School
0
By reconnet
In News
Posted October 18, 2023

VASCERN Summer School

The 1st Edition of the VASCERN Summer School on Rare Vascular Diseases will take place from September 23 to 28, 2024. This immersive learning opportunity will follow a hybrid format, combining [...]

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 OrphaNews is available
0
By reconnet
In News
Posted October 18, 2023

OrphaNews is available

The new edition of OrphaNews is now available. Check the latest news on rare diseases from all over the world and organized by topics and regions. In particular, in this issue you will find the [...]

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 EULAR 2024 | CONGRESS ABSTRACT SUBMISSION
0
By reconnet
In News
Posted October 16, 2023

EULAR 2024 | CONGRESS ABSTRACT SUBMISSION

EULAR has open its abstract submission to EULAR 2024, the European Congress of Rheumatology. Every year EULAR invites abstract submitters from all over the globe to present their work at the [...]

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ERN ReCONNET
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ERN ReCONNET is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are funded by the European Union. The content of this publication represents the views of the authors only and it is their sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Health and Digital Executive Agency (HaDEA) or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

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