News

The International Rare Diseases Research Consortium (IRDiRC) has developed a new guidebook to invigorate drug repurposing for rare diseases. Drug repurposing has often been suggested as a [...]

This interesting ERICA webinar is focused on the importance of translational research referred to “bench-to-bedside” by showcasing two successful models for bridging the gap between preclinical [...]

The 1st Edition of the VASCERN Summer School on Rare Vascular Diseases will take place from September 23 to 28, 2024. This immersive learning opportunity will follow a hybrid format, combining [...]

The new edition of OrphaNews is now available. Check the latest news on rare diseases from all over the world and organized by topics and regions. In particular, in this issue you will find the [...]

EULAR has open its abstract submission to EULAR 2024, the European Congress of Rheumatology. Every year EULAR invites abstract submitters from all over the globe to present their work at the [...]

ERN ReCONNET supports the Open Letter to the EU institutions and our national governments to stand by the European Reference Networks (ERNs) as our Network Coordinator, Prof. Marta Mosca, [...]

This webinar focuses on dermatomyositis (DM), an auto-immune disease, characterized by distinct skin lesions and a heterogeneous constellation of systemic manifestations, including myositis and [...]

This webinar will discuss challenges associated with getting ready for and conducting clinical trials in drug repurposing, with a focus on differences between trial requirements for future [...]

Under the Spanish Presidency of the Council of the European Union, the Ministry of Health of Spain will hold a High-Level Conference about “Challenges in Cancer Care”. Cancer continues to be one [...]

The public consultation on the revision of the EU General Pharmaceuticals legislation is open until October 16th 2023. As part of the EU pharmaceuticals strategy, and drawing lessons from the [...]