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I perché di questo evento Nel febbraio 2020, per celebrare la Giornata Mondiale delle Malattie Rare, le tre reti ERN (European Reference Networks) a coordinamento italiano (ERN ReCONNET, MetabERN [...]

Register to the ERN ReCONNET live webinar for healthcare professionals “Skin manifestations in EDS: what are they and how to manage them” by professors Fransiska Malfait (Ghent University) and [...]

  Register to the ERN ReCONNET live webinar for healthcare professionals “The Rheumatological point of view of EDS Syndromes: Articular manifestations” by professor Maurizio Cutolo [...]

Save the date! Register to the ERN ReCONNET live webinar for patients “Clinical practice guidelines: what do you need to know” by Ilaria Galetti (European Patient Advocacy Group representative) [...]

The Ehlers-Danlos syndromes comprise a clinically and genetically heterogeneous group of heritable connective tissue disorders, which are characterized by joint hypermobility, skin [...]

In the context of the “COVID-19 Clinical Management Support System” launched by the European Commission, DG SANTE organises a series of webinars to support clinicians and other healthcare [...]

Save the date! Register to the ERN ReCONNET live webinar for healthcare professionals “Sex hormones and COVID-19: how is the game?” by professor Maurizio Cutolo (University of Genoa). 1st June [...]

COVID-19 is a disease caused by a new type of coronavirus (SARS-CoV-2), first identified in December 2019 in the Chinese municipality of Wuhan. At the end of February 2020, Italy reported a [...]

Lupus Europe and ERN ReCONNET Patient representatives have launched a short survey to better understand how we can improve quality of life for people living with a rheumatic condition through [...]

The colours and the logo of the World Rare Diseases Day will be projected from 6.30 pm to 11 pm on 29th February 2020 on the Leaning Tower of Pisa, in order to spread public and political [...]