ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases
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  • Home
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  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s disease
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
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    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Zoe Karakikla-Mitsakou
      • Luciu Ramona
      • Matthews Lisa
      • Alexander Patsalias
      • Schlüter Silke
      • Jamy Scheerhoorn-Pullen
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SjD
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Virtual consultations – CPMS 2.0
    • ERN ReCONNET e-Learning Accredited Course on rCTDs
    • Registry
    • ERN ReCONNET Exchange Programme
    • Webinars
    • Publications
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Monitoring
    • RarERN Path
    • Documents
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
  • Network
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • WG Education and Training
      • WG Patients’ Partnership
      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
      • TF Pregnancy
    • ERN ReCONNET Coordination Team
    • External collaborating Experts
    • JARDIN Joint Action
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ERN ReCONNET ERN ReCONNET
  • Home
  • Disease_SSc
  •   Login CPMS
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s disease
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
  • Disease_IIMs
  • Subscribe to our Newsletter
  • Contact Us
  • Disease_APS
  • Disease_UCTD
  • Disease_IgG4
  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Zoe Karakikla-Mitsakou
      • Luciu Ramona
      • Matthews Lisa
      • Alexander Patsalias
      • Schlüter Silke
      • Jamy Scheerhoorn-Pullen
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SjD
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Virtual consultations – CPMS 2.0
    • ERN ReCONNET e-Learning Accredited Course on rCTDs
    • Registry
    • ERN ReCONNET Exchange Programme
    • Webinars
    • Publications
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Monitoring
    • RarERN Path
    • Documents
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
  • Network
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • WG Education and Training
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      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
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    • News
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News

Home / News / (Page 18)
0
By reconnet
In News
Posted February 27, 2020

ERN ReCONNET lights the Leaning Tower of Pisa

The colours and the logo of the World Rare Diseases Day will be projected from 6.30 pm to 11 pm on 29th February 2020 on the Leaning Tower of Pisa, in order to spread public and political [...]

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0
By reconnet
In News
Posted January 23, 2020

Live webinar “Pregnancy in rCTDs”

Save the date! Register to the ERN ReCONNET webinar “Pregnancy in rare and complex connective tissue and musculoskeletal diseases” by Silvia Aguilera (ePAGs representative for Antiphospholipid [...]

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0
By reconnet
In News
Posted January 10, 2020

Live webinar “The Raynaud’s phenomenon”

Save the date! Register to the first 2020 ERN ReCONNET webinar “The Raynaud’s phenomenon” by professor Vanessa Smith (Ghent University). 14th January 2020 at 12:30 PM (CET) → Register [...]

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0
By reconnet
In News
Posted December 6, 2019

Live Webinar “The real roles of Vitamin D in Connective Tissue Diseases”

Save the date! Register to the first ERN ReCONNET live webinar for healthcare professionals “The real roles of Vitamin D in Connective Tissue Diseases” by professor Maurizio Cutolo [...]

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0
By reconnet
In News
Posted September 27, 2019

call for new members to join existing 24 ERNs

The first call for new members to join existing 24 ERNs is open until 30 of November 2019. HOW TO APPLY TO BECOME A MEMBER OF AN ERN? The membership application process will involve several [...]

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0
By reconnet
In News
Posted September 16, 2019

How to apply to become a member of an ERN?

The process how to become a member of an ERN is defined in the Implementing Acts: a healthcare provider (HCP) wishing to become a member of an ERN will have to pass an assessment process based on [...]

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0
By reconnet
In News
Posted September 4, 2019

Systemic Sclerosis Patients’ Stories: tell us your experience

Among other initiatives, the ERN ReCONNET is mapping the existing patient’s pathways followed for every rare connective tissue diseases (rCTDs) covered by ERN ReCONNET in all the Healthcare [...]

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0
By reconnet
In News
Posted September 2, 2019

Documentation to prepare applications for the 2019 ERN Call

Three key documents are now available for candidates to prepare their applications for the imminent Call for membership to existing European Reference Networks. The “ERN Assessment manual for [...]

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0
By reconnet
In News
Posted August 1, 2019

Call for new members to join existing ERNs soon launched

The European Commission will launch in the coming weeks the first call for new members to join existing 24 ERNs, following the adoption of the Commission Implementing Decision (EU) 2019/1269 of [...]

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0
By reconnet
In News
Posted May 17, 2019

EULAR European Congress of Rheumatology (12-15 June 2019, Madrid)

EULAR will take its Annual Scientific Congress to Madrid, Spain, from 12-15 June in 2019. The annual EULAR Congresses comprise the major event in the calendar of world rheumatology. EULAR 2019 [...]

READ MORE
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ERN ReCONNET
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ERN ReCONNET is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are funded by the European Union. The content of this publication represents the views of the authors only and it is their sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Health and Digital Executive Agency (HaDEA) or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

menu
  • Home
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  •   Login CPMS
  • Diseases
    • Antiphospholipid Syndrome
    • Ehlers-Danlos Syndromes
    • Idiopathic Inflammatory Myopathies
    • IgG4-related disease
    • Mixed Connective Tissue Disease
    • Relapsing Polychondritis
    • Sjögren’s disease
    • Systemic Lupus Erythematosus
    • Systemic Sclerosis
      • SSc lay version
    • Undifferentiated Connective Tissue Disease
  • About Us
  • Disease_MCTD
  •  Login ERN Collaborative Platform
  • Services
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  • Contact Us
  • Disease_APS
  • Disease_UCTD
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  • Disease_RP
  • Disease_SLE
  • Disease_SS
  • Disease_EDS
  • Patients
    • ERN ReCONNET ePAGs ADVOCATES
      • Aguilera Silvia
      • Andersen Jeanette
      • Ballarin Castan Jose
      • Bouillot Coralie
      • Ciupera Magdalena
      • Bucsa Camelia
      • Collado-González Eva
      • Cornet Alain
      • Drápalová Olga
      • Farrington Sue
      • Frank Charissa
      • Galetti Ilaria
      • Guimarães Vera
      • Zoe Karakikla-Mitsakou
      • Luciu Ramona
      • Matthews Lisa
      • Alexander Patsalias
      • Schlüter Silke
      • Jamy Scheerhoorn-Pullen
      • Vieira Ana
    • Patients’ Organisations
      • Patients Organisations APS
      • Patients Organisations EDS
      • Patients Organisations IgG4
      • Patients Organisations IIMS
      • Patients Organisations RP
      • Patients Organisations SjD
      • Patients Organisations SLE
      • Patients Organisations SSC
      • Patients Organisations Rheumatology
    • What you need to know
      • about CPGs
    • What’s an ERN
    • Cross-border healthcare
  • Activities
    • Virtual consultations – CPMS 2.0
    • ERN ReCONNET e-Learning Accredited Course on rCTDs
    • Registry
    • ERN ReCONNET Exchange Programme
    • Webinars
    • Publications
    • CPGS & Clinical Tools
      • Expert Panel on CPGs
      • SSc lay version
    • Monitoring
    • RarERN Path
    • Documents
    • 2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
  • Network
    • Our Network
    • Members
    • Affiliated Partners
    • Working Groups (WG) & Task Forces (TF)
      • WG Education and Training
      • WG Patients’ Partnership
      • WG Research and Quality of care
      • WG Registries and eHealth
      • WG ERN Young
      • TF Transition of Care
      • TF Pregnancy
    • ERN ReCONNET Coordination Team
    • External collaborating Experts
    • JARDIN Joint Action
  • News
    • News
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    • ERN ReCONNET across press media
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    • Useful links
  • COVID-19
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