Lupus Europe and ERN ReCONNET Patient representatives have launched a short survey to better understand how we can improve quality of life for people living with a rheumatic condition through [...]
The colours and the logo of the World Rare Diseases Day will be projected from 6.30 pm to 11 pm on 29th February 2020 on the Leaning Tower of Pisa, in order to spread public and political [...]
Save the date! Register to the ERN ReCONNET webinar “Pregnancy in rare and complex connective tissue and musculoskeletal diseases” by Silvia Aguilera (ePAGs representative for Antiphospholipid [...]
Save the date! Register to the first 2020 ERN ReCONNET webinar “The Raynaud’s phenomenon” by professor Vanessa Smith (Ghent University). 14th January 2020 at 12:30 PM (CET) → Register [...]
Save the date! Register to the first ERN ReCONNET live webinar for healthcare professionals “The real roles of Vitamin D in Connective Tissue Diseases” by professor Maurizio Cutolo [...]
The first call for new members to join existing 24 ERNs is open until 30 of November 2019. HOW TO APPLY TO BECOME A MEMBER OF AN ERN? The membership application process will involve several [...]
The process how to become a member of an ERN is defined in the Implementing Acts: a healthcare provider (HCP) wishing to become a member of an ERN will have to pass an assessment process based on [...]
Among other initiatives, the ERN ReCONNET is mapping the existing patient’s pathways followed for every rare connective tissue diseases (rCTDs) covered by ERN ReCONNET in all the Healthcare [...]
Three key documents are now available for candidates to prepare their applications for the imminent Call for membership to existing European Reference Networks. The “ERN Assessment manual for [...]
The European Commission will launch in the coming weeks the first call for new members to join existing 24 ERNs, following the adoption of the Commission Implementing Decision (EU) 2019/1269 of [...]