News

The Clinical Patient Management System (CPMS) is the IT Platform for Clinical Consultations between ERN Members. The CPMS aims at supporting ERNs in improving the diagnosis and treatment of rare [...]

The EURORDIS Membership Meeting (EMM) will take place on 17 – 18 May 2019 in Bucharest. Each year, EURORDIS holds the General Assembly attended by close to 200 of its member organisations. [...]

We have recently developed, together with the precious help of the ERN ReCONNET European Patient Advocacy Group (ePAG), an online survey to collect the feedback of the community of patients [...]

The 3rd Plenary Meeting of the ERN ReCONNET will be held from 13th to 14th January 2019 in Pisa, at the Sant’Anna School of Advanced Studies.  The Meeting will focus on the following topics: the [...]

During the 4th European Reference Networks Conference, the European Commission has released a new version of the ERN information flyer and of the ERN information video. They both aim at informing [...]

The 55th Congress of Italian Society of Rheumatology will be held from 21st to 24th November 2018 in Rimini, Italy. ERN ReCONNET will be present to the Congress with a booth. This is the main [...]

The 4th Conference on European Reference Networks “ERNs in action” will be held on 21 and 22 November 2018 in Brussels, Belgium. ERN ReCONNET will be present to the Conference with 10 [...]

The next edition of the EURORDIS Summer School face-to-face training will take place 10-14 June 2019, in Barcelona. You can apply here for this training. The deadline for applications is [...]

We proudly announce that the Supplement on State of the Art on clinical practice guidelines on rare and complex Connective Tissue Diseases is now available on RMD Open. This is one of the first [...]

International Symposium on the Ehlers-Danlos Syndromes 26th-29th September 2018, Ghent, Belgium The International Symposium on the Ehlers-Danlos Syndromes (EDS) is a state-of-the-art meeting in [...]