News

The first call for new members to join existing 24 ERNs is open until 30 of November 2019. HOW TO APPLY TO BECOME A MEMBER OF AN ERN? The membership application process will involve several [...]

The process how to become a member of an ERN is defined in the Implementing Acts: a healthcare provider (HCP) wishing to become a member of an ERN will have to pass an assessment process based on [...]

Among other initiatives, the ERN ReCONNET is mapping the existing patient’s pathways followed for every rare connective tissue diseases (rCTDs) covered by ERN ReCONNET in all the Healthcare [...]

Three key documents are now available for candidates to prepare their applications for the imminent Call for membership to existing European Reference Networks. The “ERN Assessment manual for [...]

The European Commission will launch in the coming weeks the first call for new members to join existing 24 ERNs, following the adoption of the Commission Implementing Decision (EU) 2019/1269 of [...]

EULAR will take its Annual Scientific Congress to Madrid, Spain, from 12-15 June in 2019. The annual EULAR Congresses comprise the major event in the calendar of world rheumatology. EULAR 2019 [...]

The Clinical Patient Management System (CPMS) is the IT Platform for Clinical Consultations between ERN Members. The CPMS aims at supporting ERNs in improving the diagnosis and treatment of rare [...]

The EURORDIS Membership Meeting (EMM) will take place on 17 – 18 May 2019 in Bucharest. Each year, EURORDIS holds the General Assembly attended by close to 200 of its member organisations. [...]

We have recently developed, together with the precious help of the ERN ReCONNET European Patient Advocacy Group (ePAG), an online survey to collect the feedback of the community of patients [...]

The 3rd Plenary Meeting of the ERN ReCONNET will be held from 13th to 14th January 2019 in Pisa, at the Sant’Anna School of Advanced Studies.  The Meeting will focus on the following topics: the [...]