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The new ERN ReCONNET Flash News is out! Check it out and connect with us to get the latest updates on ACR 2023, we will be live from San Diego!

How can policymakers secure the promise of advanced therapies for patients over the next 6 months? Read the summary report of the TRANSFORM 2023 Conference to learn what our multi-stakeholder [...]

The recent epidemics and pandemics, in particular COVID-19, have made it unmistakably clear that human, animal, plant and environmental health cannot be dealt with separately, but need to be [...]

Join Beacon for Rare, live and in-person for The London Rare Disease Showcase that aims to shed light on the latest innovations and advancements occurring in the field of rare diseases, with [...]

The Beyond 1 Million Genomes project (B1MG) has been a €4M three-year Coordination and Support Action to support the design and testing phase of the European 1+Million Genomes (1+MG) initiative. [...]

XpanDH will host its fourth webinar titled ‘Unlocking the Potential: The European Health Data Space and the Digital Future of European Healthcare‘ on Thursday 16 November 2023, 14:00 ​- 15:00 [...]

In the European Union (EU) alone, up to 36 million people are living with one of the over 6,000 distinct rare diseases. Each rare disease, however, has a low prevalence. The definition of a rare [...]

The French Foundation for Rare Diseases has announced the opening of a new facilitation window of the MOOC From Lab to Clinic: Translational Research for Rare Diseases on October 9th. This update [...]

Orphanet has developed and produced several important resources for the rare disease ecosystem. Here is a list of the latest news: ORPHAcodes. Rare disease-specific coding systems are key for [...]

The International Rare Diseases Research Consortium (IRDiRC) has developed a new guidebook to invigorate drug repurposing for rare diseases. Drug repurposing has often been suggested as a [...]