Archives

Here is a list of relevant documents in support of rare/complex patients developed by EURORDIS and the European Commission: Thinking to apply as an ePAG advocate: Short guide (EURORDIS) Patient [...]

Here is a collection of important dissemination materials developed by the European Commission on the Clinical Patient Management System (CPMS).  More info and details about this important system [...]

The Research to Reality: Digital Solutions to European Challenges event will take place at The EGG in Brussels on 5 and 6 February 2024 from 8.00 to 17.00. This important event is organised under [...]

Join this #EUHPP Live Webinar scheduled on Jan. 26th from 10.00 to 12.00. Health workers are the beating heart of every health system, as no health system can function and be sustainable without [...]

ERN ReCONNET has translated the CPMS description in 24 different languages, here is the list: ERN ReCONNET. CPMS – Bulgarian ERN ReCONNET. CPMS – Croatian ERN ReCONNET. CPMS – [...]

ERN ReCONNET Exchange Program aims at enhanceìing knowledge sharing and stimulating collaboration between health care professionals in ERNs and strengthen capacities and organisation of the ERNs. [...]

In 2023, a Task Force of ERN ReCONNET dedicated to the transition of care has been established. This task force is led by Prof. Gabriele Simonini (AOU Meyer IRCCS, Firenze, Italy) and Prof. Tadej [...]

The new ERN ReCONNET Newsletter n. 22 is out! Here is a list of our news: Collection of stories of SLE patients ERN ReCONNET transition of care survey for HCPs New Sjogren’s Syndrome Disease [...]

EURORDIS launched the Patient Partnership Framework for the European Reference Networks (ERNs) – a new guide designed to support the implementation of stronger patient partnership through all [...]

The 5th International Symposium on IgG4-Related Disease will be held from Thursday April 4th to Saturday April 6th, 2024 at the Star Rosa Grand Hotel (Milan, Italy). The 1st International [...]